Ankylosing Spondylitis - My Story

My Story of the problems I had with diagnosis when the hospital sent out the wrong letter...

Category:

People & Blogs

Tags:

• Ankylsoing
• Spondylitis
• depression

[rockcityaudio]

Hello,thankyou for making this video,it really helped me actually.

I just found out that I may have this condition because I was diagnosed with Uveitis,

I'm very very scared but your story really made me feel that I'm not alone.

I'm going to have some tests could you please advise me what tests to ask for

I'm currently on two sets of eye drops from moorefields for the inflammation

anterior Uveitis

[GoodShipDenton]

@rockcityaudio

Hi there,

I had x-rays of the sacroiliac joints and neck. A look at my GP visits, going back to when I was 16 and had regular complaints of stiffness, lower back pain and pain in right leg, building a case history of problems. Blood tests, visits to Rheumatologists, Physiotherapists all with an understanding of the condition. It took some time but I was finally diagnosed with AS.

Tom.

[tweeters54]

Turn your volume up when recording, silly!! Can't hear a thing..waste of my time.

[GoodShipDenton]

@tweeters54

Why don't you turn your volume up!

[nightnurse1984]

funny funny Q? im a 25 year old female from australia 6 years now with this pain that is AS i am after some gental love making positions as i really want to enjoy my life still any ideas ?????

[GoodShipDenton]

@nightnurse1984

Gentle love making positions

Look sweetheart we have very different bits that do very different things...

I can only hope that your sexual partner is caring and supportive of your plight,

my advice, literately ride through the pain and discomfort , dont let it stop you trying new things and do as much as you can to get those endorphins flowing.

Giggity!

[GoodShipDenton]

@maisygirl07

What the fuck's an F-bomb?

[Gurlinthewurld]

Thank you for sharing your story. My husband suffers with AS and most days are hard. Its sadly easy to forget how much pain another is in when you can't see it :( he had a bad bout of iritis just like your photos. I wish you all the best. My husband takes enbrel injections from time to time but doesnt feel the sude affects are worth the risk of painfree. God bless.

[82luvie]

Ever heard of the drug humera? Apparently this is supposed to help. But your condition really sucks, my husband has it. And I feel for you all out there with A.S.

[urusol]

@SusanaNeves7 NO , I dont try it , for me LDN is the best , I make a video talking about my experience with LDN but it is in spanish , I read a little of etoricoxib , it is a anitnflamatori , with a few side efects , be carefull it is your body , best wishes

[SusanaNeves7]

@urusol i am now with Etoricoxib (turox, 60mg), and for now it results! Have you tried this one?

[SusanaNeves7]

@harinshankar There`s not a cure, but you can have more peacefull days with some rules everyday. Maybe if you investigate more videos on you tube with the name of the disease, the more you see, or read, the more you learn. The best advice is not to give of being happy, and share good feelings with the loved ones. Never give up to do sometinhg everyday, and get yourself some rest being out of stress!! the rest will be better results!

[splibb]

@maisygirl07 Grow the fuck up maisy

[jbub77]

hello rockcityaudio

I know how you are feeling I was diagnosed with Uveitis two years ago, in both eyes, my eyes have been inflamed ever since and have had eyedrops and steroid injections in my eyes every 3 months have cataracts in both eyes from the steroid shots and drops and steroid pills, two weeks ago I finally got cataract surgery in my right eye, and I have AS also not quite that serious yet couple of bad knee and hip pains thou. But I guess its only going to get worse.

[ganonforce]

I cant sneeze or cough i try to hold it as much because the pain cant not be described also the sound of cracking makes me sick. However mine is really bad i cant walk or sit for longer than 20min without being in crazy pain.

[ajonz9213]

i would like to invite you to check out a new site that i set up to network people with AS and to share wisdom, treatments and encouragement!

Please come check out the website! im hoping to make a large network and bring us together to understand this disease!

check out my profile for a link to the site

as help within .webs .com

Andrew J

[urusol]

"LOW DOSE NALTREXONE " I will try this drug this month !! please send me information !!!!  best wishes !!!