We finally got Nora to say her new word "Hello" on tape. We also filmed a game we like to play with her with ping pong balls since they are so light.
Nora is dying from SMA (Spinal Muscular Atrophy). SMA is the #1 genetic killer of infants and 90% of Type-1 SMA kids don't live to see their 2nd Christmas or even their first. SMA is a horrible disease that weakens all the voluntary muscles of the body. Cough, sitting, standing, swallowing, hands, fingers, toes - everything skeletal is affected.
She is so cute! c:
beautybaby221 1 month ago
She's precious :)
maxboomerCP 1 month ago
so cute
carebearhotwheels1 1 month ago
Aw! So cute!
TheAdoptedShayTard 1 month ago