IHawareness video.wmv

The IH Brain Pain Team are trying to raise awareness for a little known yet devastating brain condition called IH. (Intracranial hypertension.)
Old names for IH include Pseudotumour cerebri, benign intracranial hypertension (BIH) and idiopathic intracranial hypertension. (IIH)
It can affect anyone at any age, and can cause life altering disability.
Most people have never heard of IH, and most IH sufferers look well, when they are not!!
IH symptoms include severe headaches (as if your head is in a vice!), Vision Loss, Optic nerve swelling, Double vision, Pulse- symchronous tinnitus, Sore / stiff neck, Back pain, Memory / cognitive problems, Fatigue, Malaise, Dizziness, Light headedness, Photophobia, Noise sensitivity, and many more symptoms.
No two cases are the same, making it a very difficult condition to manage.
For some people drugs help to control the brain pressure, but for others the drugs don't work and they have to endure painful sugery.
IH is an invisible illness.
IH sufferers look well, and often don't get treated with the compassion that they deserve, because people don't realise how serious IH is!
Please take a few minutes to watch this video put together by many IH sufferers in the hope that we can raise awareness for IH and the IH Research foundation.
The IH Research foundation are the only non profit organization in the world devoted to researching chronic IH, to find better treatments, and ultimately one day a cure!
Please go to the IH research foundation website for more information on IH.
http://www.ihrfoundation.org

If you are interested in getting involved with the IH awareness campaign then please go to the IH brain pain team website for more info.
http://www.ihbrainpain.org

THANK YOU!

Category:

Education

Tags:

• IH awareness video
• IH
• IIH
• BIH
• PTC
• ICH
• Pseudo tumour cerebri
• Neuro
• neurology
• brain disorders
• brain conditions
• brain illness.

[sunlona]

so nice of u.song is cool as well ,who is singing by the way?

[vickiTauthor]

The song is called "heaven" sung by Bonnie Tyler, who kindly agreed to us using her voice.

Thanks for your comments. x

[vickiTauthor]

Thanks for all the lovely comments!

You are very kind. xxxxx

[vickiTauthor]

This is the updated version of the video...with everyone who sent photos to me included in it!

I was contacted last night by some people who had sent photos and I didn't get them, so they re-sent the photos to me and I redid the video today.

Please share this version!

Thank you! xxx

[vickiTauthor]

Aww thanks Chris. Love you! Mum. xxxxx

[chrisovcry]

brilliant job mum =]

[sunnybird]

Thankyou for doing this Victoria. We have to raise awareness of this debilitating illness..

Love Katie's mam

[Renesmesh]

i have this condition so thankyou xxx

[luckneko1]

As a person who has had fibromyalgia for over 25 years (it started in my 20's) I so understand how people do not think you are sick because you look fine. I look fine too and live in horrible pain and exhaustion. Check into the Invisible Disabilties site. There is an awareness day I join in annually. Although I am not disabled I am sure suffering. God bless all of you. My coworker's daughter has the same condition you do.,

[IwontConform]

I dont have this,but i have a noise sensitivity.It makes me irritable and hostile.I also find myself easily startled and i even lose my balance sometimes and walk off course.With all we are exposed too,like emf fields,bad foods,atmospheric heavy metal fallout,its a wonder that most people can function,even if they dont have a chronic condition.

[pwincesssid]

absolutly brrilliantly said!!!!!!!!!!

thankssss

keep up the great work

thankuuu very much

xxxxxxxxxx

[carrielovesdonny]

great job i spotted my niece in the video

[soupdblu]

Great Job Victoria!

[xdevilxbabex2003]

thanks again victoria , that's twice you've managed to make me cry lol. love both videos. once again thank you for doing this xx