A Day in the life Part 2

Loading...

Sign in or sign up now!
Alert icon
Upgrade to the latest Flash Player for improved playback performance. Upgrade now or more info.
49,721
Loading...
Alert icon
Sign in or sign up now!
Alert icon

Uploaded by on Oct 30, 2008

Phoenix at 6 yrs old Part 2

Category:

Nonprofits & Activism

Tags:

License:

Standard YouTube License

  • likes, 0 dislikes

Link to this comment:

Share to:

Uploader Comments (ggfox)

  • How is he doing now? I hope that he is doing better. Good luck.Keep on fighting

  • @MsGymnast77

    Every thing is going prettyy good, so no complaints!!

    Thanks

    George]

  • What disease does he have?

  • it is called Pompe Disease. or Glycogen storage disease type II.

Top Comments

  • What a cute kid

  • you have a gorgeous young boy! you seem to truely love and care for him which is absolutely wonderful, i wish you and your family the best

see all

All Comments (17)

Sign In or Sign Up now to post a comment!
  • The miracles are happening watch "the arrived" at youtube by hashemstudios plz, or visit live speakers paltalk middle east >islam> "ansar al imam almahdy" to ask how to be part of these miracles now that the Mehdi also known as comfortor has emerged

  • Poor baby. You have a beautiful child. Many Blessings to you and your boy!

  • What a fantastic son you have here!!! The heart of a champion!!! You know your onto something here because by sharing you not only share a bit of your daily life with the world but in doing so give courage to those who may be going through the same daily struggle....God Bless you all~Lin

  • I just wanted to let you know how much respect i have for u. I know it must not be easy havening a child with this disease. The way your dealing with it is amazing. You are truly a example for many other parents. God bless you!

  • and though this news is rather sad, well I just have to laugh.

  • Oh my Gosh he is such a sweety I just told my husband I want to reach through the computer and hug Phoenix. I am diabled to but seeing your care lov and affection knowledge for phonix makes my day her is true Heaven sent.

    God Bless you and your family XO

  • Thanks for sharing! Please im or email me.

  • Dear George,

    This is a fantastic video that really gives great awarness to not just pompe disease but children and families living with life allturing disablilities, conditions and diseases. Pheonix really shines, and you can really tell that his condition will never stop him and he will go far in life. Whether hes a teacher, stay at home dad or spreading awarness he will do each and everything with perserverence and determination.

    Yours Truley

    Ariah

    ps. i am disabled too, wanna talk?

Loading...
Alert icon
0 / 00Unsaved Playlist Return to active list
    1. Your queue is empty. Add videos to your queue using this button:
      or sign in to load a different list.
    Loading...Loading...Saving...
    • Clear all videos from this list
    • Learn more