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Focal Dystonia (1) Understanding and Treatment as an emotional condition 1

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Uploaded by on Jan 28, 2009

The first in a collection of films where Dave Scragg explores the understanding and treatment of Focal Dystonia as an emotional condition, highlighting the work of Joaquin Fabra. Dave talks to Joaquin about his personal experiences of developing the condition, discovering the cause and thereby treating himself and others.Dave also speaks to two Trombonists about their experiences. In this first film Rob Egerton talks about how he developed Focal Dystonia

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Uploader Comments (davescragg)

  • Hi and thanks for your comments. I would be very interested in hearing your story. Please email me when you've got a spare minute..

    Dave

  • Please note!!

    If you try to email me through the golobalbones site, they may not get to me at the moment!!!

    Best to contact me through youtube!!

    D

  • Hi Dave. Is there anybody in the UK I could talk to about this problem? My playing began to deteriorate in 2003. I gave up on it after four years. I recognise most of the symptoms as those I have experienced. Thanks for your time and the videos!

  • Hi, can you email some contact details and I'll get in touch ..

    Dave

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All Comments (12)

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  • Dave, I would very much like to communicate with you about focal dystonia. I was a French horn player. About 20 years ago, I was preparing for a recital, as well as getting ready to transfer to the New England Conservatory, when I began to experience muscle spasms in my lips. In a short period of time the spasms grew worse. Ultimately, they ended my career as a musician, as I was no longer able to play. To this day, if I try to play the horn, I experience the spasms. Please contact me to discuss

  • My Name is Thomas Wade. I was diagnosed with Oromandibular Dystonia in 2006. I was a singer/ recording artist and suffered a decline in ability that is very much like some of the experiences in this video, with the added challenge that after my voice quality , strength and range were gone, it became difficult to form words. I am now on the mend largely due to hypnotherapy, and a great deal of learning about neuro-plasticity. Read "the brain that changes itself" and " Evolve your brain" amazing!

  • I am a cellist and it seems that I have focal distonia; after a year going to many doctors and doing physical therapy I've finally got a diagnosis; my problem is having my right thumb in place (bow arm)

  • it's from playing with too much tension. It is treatable by retraining your hand to function with no tension. it takes a long time to undo, but that's the answer. I tried botox, accupuncture, etc. nothing works except physical therapy, ie. for a guitarist like myself, you can use a guitar with thread instead of strings and do finger exercises and undo the tension. it does come back but it's reversible

  • ?  ?

  • Don't be fooled by the medical cartel, I recovered. There is a way out of dystonia. Soon I will be putting up videos to show dystonia sufferes how to help themselves. Deep brain stumulation is a farce and so is botox, figures they would go find something expensive to inject us with so they can make money.

  • HI everyone,

    the last posting came from my son's youtube sight, so if anyone wants to reach me I'm at sherstudios, not coolmamiacs360!

  • Dave,

    Thanks for posting the extended interviews with Joachim and his students. I am a faculty member at the Berklee College of Music and have suffered with focal dystonia for two years. I have been working with Joachim for about 6 months. I thought I was making some progress but in the last month I feel alot worse. It was very helpful to listen to the two trombonists talk about their experience , I think it's enabling me to refocus on the way I'm approaching this condition.

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