Re: Bedridden with Dysautonomia

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Category:

Education

Tags:

• exercise
• book. doctor
• writer
• God
• love
• dysautonomia
• bedridden
• wrong
• paraplegic
• kabc

[DysautonomiaMD]

If you "YouTube" Search now, "d" "y" "s" now leads to:

"Dysautonomia", "Dysautonomiamd" and "Dysautonomia POTS"...if you keep typing, you also get familial dysautonomia. The computer must be keeping track! Our numbers are growing and/or something NEW has happened! Am I the only one who noticed? I just noticed it today. LOL to all, Dr M

[DysautonomiaMD]

Thank you so much, and it is so comforting to know that we both have written a book. I would love to do some collaborative effort to help The Cause...God Bless You for getting a publisher and a real ISBN # and everything. Some people have this as their life-long dream. This is a great feat in itself; a yet greater feat, given our illness.

Highest Personal Regards, Dr M

[lednugenna]

I used to collect all the data but have never found any doctor interested in looking at it. I have even had a neurologist check my vitals while seated in my wheelchair after pushing myself from the car to the building and then his office, then standing then laying down and he was not impressed .???? I have yet to have a tilt table test and I wont until I have a doctor that I trust to interpret that test and make sure that it is conducted correctly. My pulse often doubles when I stand up.

[DysautonomiaMD]

Do you still have all your data?

[luminescentfeeling]

Hi DysautonomiaMD

Thank you for making this very interesting video that gives us further insight into our problems.

I appreciate you feel very poorly and took a big effort to make this to help other people.

Some very good ideas to try and join up and share information to try and further knowledge.

A refreshing and worthwhile idea, and hopefully one that will help us all.

[DysautonomiaMD]

It is my pleasure to have you all to open my eyes to this area of medicine. When you get afflicted, please do let me know exactly what you are feeling. I'll draw up a Survey one day and let's see who we are and what common threads we have throughout. God Bless All of You. Highest Personal Regards, Dr. M

[SANDMANCASTHISSPELL]

Welcome to Youtube;-) love see more videos. Do u know Dr Nancy Klimas of UM in Miami?

[dysautonomia1]

I have written a book about living with dysautonomia. I am bed ridden too and have done research. My cardiologist told me I should publish another book where we get together with our research and how dysautonomia has effected our lives and make it a book of knowledge. The link to my book is:God Needs Me by Lynn Fox Adams | ISBN # 978-1-60799-592-0

[dysautonomia1]

Hey, I am bed ridden too, have been for 15 years. I just had a book come out titled,"God Needs Me, Living with Dysautonomia, by Lynn Fox Adams

I was interested in communicating with you since we are both bed ridden.

[DysautonomiaMD]

Appreciate all the warm reception and sentiments.

I hope and pray that we can make a real difference together.

[DysautonomiaMD]

Thanks for the welcome to YouTube. I was too sick to know what it was, for the last 3 years. I do not know Dr. Kimas, but I barely lived by knowing my cardiologist, Dr. David Cannom in downtown Los Angeles. I'll learn the players in this field as time goes on. For now, I am here for you guys.

[DysautonomiaMD]

Sorry the medical profession has not been illuminated to all. Please help by visiting my site and telling your friends. Thank you to the UK and to Canada! Where else are we located?