www.OuchUK.org - Cluster Headaches

This video was produced on behalf of OUCH UK (who own full copyright). It introduces a medical condition known as cluster headache, nicknamed suicide headache: Thanks to Martyn Lewis CBE who kindly gave his services free. http://www.ouchuk.org

Category:

Science & Technology

Tags:

• Cluster
• headache
• OUCH
• UK

[zachary0515]

i'm 13 years old and i get cluster headaches on my left eye and i was wondering why does it happen the same time every day?

[jjuk69]

@zachary0515 @zachary0515 Hi Zach. People suspect the hypothalamus which controls the body clock. This also explains why seasonal changes can bring on a cluster. There's a LOT of information on ouchuk.org, please check it out :)

[hEaDoNtHeBlOcK]

I'm an episodic lefty :) Diagnosed and suffering for 12 years. I suffer for around about a month and a half a year. I was initially prescribed Sumatriptan injections but I found them incredibly strong and as they only come in 2 doses I found they weren't a reliable source of medication (I often have 4-5 attacks a night).

I am currently experiencing a fairly severe bout at the moment and I have just been prescribed the nasal spray.....anyone tried it? Am I better off with O2?

[jjuk69]

@hEaDoNtHeBlOcK The nasal spray takes too long to work, the preferred (and licenced drug) for CH is Imigran subject (injection) 6mg. There are currently trials with 4mg Imigran jabs which would allow people to inject 3 times a day instead of 2.

[northface131]

All must know if you have the tools to abort clusters, they should be taken at onset immediately. Hit that O2 tank hard or inject the sumatriptan at the FIRST sign.

[jjuk69]

@northface131. Very good advice! Do not wait for it to take hold, when the eye pain/runny nose starts, hit that tank hard!

[hobbsyboy]

This is reason why Im doing the London 10K run. Love you mum xxx

[here2helpu2day]

THERE'S A CUREIt's like being smashed in the head with a baseball bat & left to die. Believe.Comfort arm soak in the tub, compressesCry it only makes it worse.Drink a lot of water,I would then start to feel better.Dr. Brian Cody at the Arizona Pain Center 602-265-8800 Diagnoses Occipital Nerve Damage. few minutes with twilight sleep, X ray between head and neck,inject a dye to pin point nerve, then burn it out.woke up, no with no pain just,bandaid.Jan

k9zrkids2@aol.com

[mikeburg]

@jjuk69 my insurance will only cover 9 imitrex every two weeks and wont cover o2 at all. but it does cover hospitable visits i am going through a cycle now and am getting 3 or 4 a day I dread going to sleep

[MurphMagnetic]

@zachary0515 do you have oxygen or triptans or zumatripan

[ClusterHeads]

@hEaDoNtHeBlOcK I found the shots only cause side effects,also lots of rebound headaches.

[jaydabee]

As I never had my diagnosis made official. Now I'm due back to work in the new year and I feel if I can't clear this episode I will lose my job and my home

[jaydabee]

I have battled with episodic CH's for approx 10 years now. The doctors all had their theory's but it was research online that brought me to OUCH. It was a a Eureka moment and a oh crap moment too. I thought I had got rid of them when I quit smoking a few years back but now I'm smoking again and the bitch is back. I don't know what to do

[richardblissett]

I have been suffering from cluster headaches since my final year of university (I am 38 now). Even though i explained the periodic symptoms and the cluster episodes to various GP's I was told it was migraine and I've been taking migraine medication with little success. Thanks to a podcast episode of "How migraines works" I realized what I had been suffering was not migraines but Cluster Headaches! Now hopefully I can find alternate medication that may actually work!

Thanks OUCH!