This is a remake of the original Stennis Foundation video, which had the audio muted by TPTB. This has original pics, and added pics.
The Stennis Foundation is a nonprofit committed to raising awareness of the Leukodystrophies, and to raising funds for Leukodystrophies research. *Song is "Heal the World" by Michael Jackson & Friends.
98% of Leuko-Dystrophy cases die by the age of 5 without treatment... I am now 30 with doctors who have a shocked looks on thier faces hne they see the evidence I have lived this long without treatment... (The headaches started at 27 which lead to them finding it)
Neventik1 1 day ago
i have this disease my cousin died of thisand now i have it
BDproductions696 2 years ago