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Patient Speaking on World Rare Diseases Day 2010

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Uploaded by on Feb 26, 2010

This is not beautiful. I am not technologically gifted enough to know how to get this off of DVR to the computer. But hey, I think the promo went well enough to share the video taping from my tv. Hope you like.

Dont worry, the news channel will link the story to their website!

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  • do you have part 2?

  • I suffered from acromegaly for the majority of my life although it wasn't diagnosed until I was nineteen. It was difficult for doctors to see anything different about me because for me it did not cause gigantism. Any symptoms that I had because of the disease were unfortunately treated as separate issues, like my thick hair growth and vicious acne. I always knew something was wrong with me, that I was different, and told the doctors I thought there was something in my brain. I was right.

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