~~~I am an SLE and RA patient (DX'd Oct 2005) who was recently DX'd with RRMS (Dec 23, 2009) ~~~
This was my first hospitalization because of the MS. This is just a simple personal video blog during my hospitalization.
I was terrified the night I was admitted, as I thought I would not be able to walk again. I remember looking down at my legs, wondering how all the sensation of being in them the day before could be removed so fast! The spasticity was so severe that I was not able to stand or walk, nor could I bend my legs or bring my knees up to my chest while laying down. My bladder had to be catheterized in the ER, releasing one liter of urine which I couldn't void on my own.
125 mg of Solu~Medrol every 6 hours for 72 hours, to cool down the inflammation in my body. See the puffy face grrrl... I was a bit zoned out, to say the least!
Two new sets of MRIs during my stay showing lesions on my spine, which weren't there in September of 2009. Spinal involvement is now part of my prognosis. I took baby steps with the walker in that hospital, and I assure you that it was like running a marathon at a snails pace! 10 feet down the hall was a huge feat!
One week after the hospitalization, I am able to walk unassisted 6-8 feet, anything further than that requires bilateral forearm crutches. I'm still really fatigued, lacking muscle strength and coordination for simple motor tasks and am taking things slowly. My neuro doc said that it's too soon to tell if I will make a full recovery, Only time will tell...
I have been waiting for my insurance company to approve my Copaxone injections for over a month now! I hope that they enjoy paying that hospital bill!
One amusing part of my hospital stay were the IV steroid induced hallucinations. I never knew that leaf designs could wink or scowl...
Moonface grrrl, CNS grrrl unplugged, uncensored and just plain ole tired...
Wishing each of you well as well as quality days and nights,
Kim
steriods will help! but it has very bad side affects. start a raw food diet and get your minerals stay away from salt and wear a leg brace to help give you balance until u can do without it! make sure you get the msm by solgar at a health food store or online! i have a twelve year old who is very active so i know how u feel. i am at the roller rink with her every weekend now and i love getting my life back step by step. i was feeling like a senior citizen and i said no way! i love life! and i am
TAHSIYN 2 years ago
Hi Kimmy...
I just saw this video...Sorry my friend for all you are going through...I love you..talk to you soon....Thanks for sharing your most vulnerable moments. That was brave of you...May you have peace tonight.
walkinthespirit8 2 years ago