Essential Tremors - Why I support Stem Cell Research

I have a genetically inherited neurological disorder known as Essential Tremors. In this video I discuss what it is, how it effects me, and why I believe in stem cell research versus some of the alternatives. None of the medications have really worked for me. If they haven't resulted in adverse reactions, such as affecting my psychological state (Mysoline is the devil), they simply haven't worked at all. And the alternative of surgery? ..I cover that in here.

Anyway. Please understand - this is the frustrated rant of someone who is affected by a neurological disorder whose condition could greatly benefit from further stem cell research.

Category:

Music

Tags:

• Stem Cell
• Essential Tremors
• Neurological Disorders

[rubixcubexo]

I've had this since I was roughly 7/8 ?(now 19) and I know all too well what you mean about going out for dinner.

Also it means I can't work locally (I live in Cornwall, UK so most jobs are Cafe's and restuarants) as I would spill everything everywhere!

Get's me down sometimes, as I also agree with what you say about surgery.

I wish this was well recognised in Britain :(

[Amhran80]

@rubixcubexo It's not a well recognized disorder in general. Too often it is linked with Parkinsons even though it's not one and the same. All of the medication and research is being put towards disorders which rob people of ..so much more, like their lives.

That's not a bad thing. But it would be helpful if ET was recognized as well as a separate entity.

[martinclembo]

Thank you for your video on ET, I have ET often in my hands and sometimes in my head. If you don't mind me asking, when did you first notice symptoms and is it progressing any? What if anything do you find helps to relieve symptoms.

Regards Martin

[Amhran80]

@martinclembo The symptoms first appeared when I was nine. Or rather, that's when they were pronounced enough that I and kids around me noticed. Over time, the tremors have gotten worse; but, most medications don't work for me. Limiting caffeine intake has helped only a little. Massages help with the residual soreness from being in a state of perpetual motion.  That's really about it.

[michelle027girl]

hello.. well i'm 15 yrs old and i think i might have this but i'm not sure. it started when i was alot of stress last yr. it was a minor but constant twich on my toe then my eye and now its everywhere.. now when i try to keep my hands straight in front of me they shake its not just a twitch. anyone know how to help me find out if i have this? i know it'll just keep getting worse. i asked my doctor about my twich but she didnt seem to care and my parents think its nothing. i disagree.

[Amhran80]

@michelle027girl  Essential Tremors is usually genetic and manifests at varying ages. However, the fact that you endured a lot of stress suggests to me that you're dealing more with anxiety. If you're doctor isn't concerned, you're probably okay. But, ask for a referral to a neurologist just in case, for you own peace of mind.

[timidas]

what frustrates me the most is the lack of understanding from other people everbody knows parkinsons but so very few know of essential tremor.

[timidas]

It is a difficult thing to live with sometimes

these are the things that make my head tremor worse caffiene,confrontation, argueing, anger,lack of sleep,vigerous exercise,excitement,large meals, spicy food,to much alcohol meaning more than two pints.But i find is the best way of controlling my tremor if i need to.Also i find its worse in the morning

going down to breakfast when i go on holiday is a nightmare.Essential Tremor use to make me very paranoid but know i don,t care what people think

[sparticus214]

i totaly support steam cell research people are aragant and ignerant to what it is and what embreos

[GNut1980]

god bless u sister,,, u are a lovely soul

[SelSun83]

@timidas I fully agree with you!

[martinclembo]

Well let me tell you, you come across great and I enjoyed watching your video. I am having a bad time with this at the moment, it started about 6 months ago and now I can feel it in my head, it’s just the worry of how bad it might get. There is very little info out there on this condition.

Regards Martin

[martinclembo]

Thank you for your video on ET, I have ET often in my hands and sometimes in my head. If you don't mind me asking, when did you first notice symptoms and is it progressing any? What if anything do you find helps to relieve symptoms.

Regards Martin

[dararat27]

Your video kicked butt. My mom who is 72 has ET. She's already paralyzed on one side due to a stroke. Now her 'good' side has the tremors. It's a bad, sad situation right now. I sure could use some tips/support on what's helped you on a daily basis. Is there anything I can do, govt wise, to help on this issue?