Guillain Barre Syndrome - My Story Part 1

Part 1 of the story of my recovery from Guillain Barre Syndrome. If you have, or know someone who has this debilitating condition, this may help in the recovery process.

Category:

People & Blogs

Tags:

• GBS
• H1N1 Vaccine
• Flu Vaccine
• Guillain Barre Syndrome

[jonmailer]

Thanks to all of you who have commented - Risa, Tom, Ben and others. If you have any questions, please email me. It is 2 1/2 years since I had GBS and I am at 98% recovered. Love to assist where possible. Love. Jon

[jonmailer]

Thanks Alex! Keep your Uncle positive and things will be great! Jon.

[jonmailer]

Many thanks to all of you for your comments and stories. Let us work together to assist to make the recovery from this syndrome as effective as possible for everyone who experieces it. Thanks. Jon.

[fruMicka75]

Hi. This is a god video !! The same sympthomes that our son had last year when he was a litte more than 4 years old. Not a plesant desese...... I`m happy i found this video. Maybe you could contact me, so we can just talk ??

[lgvmd]

@vsjavicho1231 Por mi que se muera tu puta mujer y toda tu cochina familia de mierda mendigo indigena

[Carabin33fr]

Hi i'm a medical student and it's always interesting to hear about people's experiences.. Thank you for sharing! Glad you made it through.

[WYNDLE71]

My mom suffered from this years ago. She had it from the neck down. She couldn't move or control her muscles. We all were so scared. Test after test & finally we received an answer, she was diagnosed with Guillain Barre. I was by her side 24-7. She had to go through a significant amount of physical therapy, We were all surprised & grateful to God that she made a full recovery. Many people dont. She still lives in fear that it may come back....Thanks, BJ

[tye933]

13

[tye933]

Sorry he got it when he was 23

[tye933]

Thankyou this is very good infromation my older brother got it when he was 5 and 14 he was on a trckie and was in hospitial for 5 months they put him in a induced coma and he couldent talk or walk he was in a weelchair for 4 months although he started with his head then down to his feet back up to his arms and to his lungs he is now 15 and can walk talk and eat him self i can still remember the first time he eat in 4 months he had the biggest smile on his face he the doctors belive it will com

[MsMezzaa]

Thank you for posting this video. It had helped me understand the disease. I happen to have met someone today in ICU with GBS, and didn't know what it was. Now I do. Thank you:)

And keep going with the recovery. You look great! Go Aussie Spirit!