Allie's really hungry ...a look at Prader-Willi Syndrome...Could you tell her no?

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Uploaded by on Aug 7, 2010

After dinner Allison (6) is pleading with us for more food. It is very difficult to tell her no. She really is still hungry. Prader-Willi syndrome is just so difficult...if only we could help her to understand.

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Uploader Comments (Ransey21)

  • Allie has recently spent 5 months at The Children's Institute in Pittsburgh PA. She is doing very well and has managed to lose a few pounds. We have made our home a food secure environment and we do not give her the opportunity for more food on her plate. I will be posting more videos of Allie soon so you all can see her progress. Prader-Willi is a very confusing and misunderstood syndrome. I filmed this video to show that even after a full meal her brain is still telling her she is hungry. Pri

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  • i love this video maybe its becuase i have pw

  • I work in a care home for adults with PWS and I think you are amazing for being able to cope with this condition 24/7.

    

  • @Ransey21 hey i ent there to ive been there twice ive ki ndof recntly bee n there like during the summer time after 8th grade now im a sophmore

  • your a nice mom. still keepin it cool and not getting all mad =D

  • awww thats cute

  • awe....ashley...thanx babe....anthony is my son...he is a challenging 6 year old, but he is perfect to me! i love him so much, and wish that i could take on all of his pain for him!

  • My best friends son has pws. Its heart breaking. The poor little guy has a constant feeling of hunger that will never go away. He started sneaking food from the trash can. She has since has to lock it up. As a mother, I couldn't imagine having to tell my child no when they are hungry. She is such a strong woman in knowing she has to tell him no or else he will die. My little buddy Anthony Michael. Such a sweet angel.

  • hi i was born pws i know what your litte girl is going trough i feal the same  way but i understand now wuy my mum and dad tells me no i cant have more to eat iam 19 yrs age i was 4 wean docters tould my mum and dad i had pws how old is she? she gorges little girl

  • Does she constantly feel hungry? Or is it just an intense craving for food? I read up on it a bit but I couldn't find an answer.

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