Autism: When More Help is Needed

Cost of providing HOME health care even at 24/7 is THOUSANDS of dollars LESS than costly out-of-home placement. So, it makes sense, in cases like this, where a family is willing to care for their family member, that funds would be available to help this win win situation work.

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[MairiBerry]

I was wondering why it was so difficult to have him cared for outside the home. Obviously that's a cruel thing to do, since J wouldn't understand what's going on, and it would be cruel to his family. I just feel bad for the other children and husband since everyone has grown up in the shadow of his care.

I saw that you mentioned something about a network after you and your husband pass on. Will one of your other children take care of him? I think you're remarkable and there is no easy way.

[kgaccount]

@MairiBerry Every family of an autistic child has the fear of what will happen after they are gone. We do have people in place, but I don't expect them to do what we are doing here. It's too much. I do expect they will protect and advocate for him in the best place possible in the future, which is one major reason I'm trying hard NOW to bring more awareness and better care and treatment to this delicate population

[shipcritic]

Amazing but difficult videos to watch. What about parents of adults with severe autism who don't have the money for nurses and all the special help? What will happen when you are no longer able to give this high level of care? Thank you for giving us a reality check. 

[kgaccount]

@shipcritic Thanks for watching. To answer your questions: Parents who don't fight for the services and win them as we did (with help of great disabliity right's attorney), suffer immensely. No doubt, services and supports should be based on triage...those who need the most support should get more than those who don't. Nothing complicated about that. Also, so long as special help continues supporting a family, there is NO reason a family wouldn't be able to do this high level of care.

[kgaccount]

@PorkChopMissPiggy Well well now, isn't this interesting...ONE of your subscriptions is to Liberal VIewer, a dad who volunteered on Obama campaign and champions free speech and CIVIL RIGHTS FOR ALL. Guess you outta cancel that sub honey cuz it seems like you don't honor that code when it comes to autistic persons. Typical FAKE liberal. Hides behind alturistic motives, slogans and PRETENDS to care about others and wants to help.

[kgaccount]

@PorkChopMissPiggy So you admit you're a liberal, but you want my son to be shot between the eyes? Wow, that's amazing. A very poor example for the liberals out there who would advocate to HELP the poor, defenseless, disabled and needy. Shame on you.

[Lynnieburd]

reading end now. my dad, when alive, just died last year sadly, fought constantly for 2 on 1 support. they'll fight you back and we constantly have to still fight for it.

[frances1025]

After many years working with children with many complex disabilities and diagnoses I have experienced the challenges that you deal with every day and I admire your strenghth, children would come to us normally around the age of 14 or 15 when the parents were at the their total end and could not cope anymore...better home funding at an earlier stage and with more community awareness and support then parents of disabled children would have same choices to keep their child at home as we all expect

[witcheypooh2000]

God bless Jamey... my heart bleeds for him...thats gotta be so hard watching someone restrain your child. but doing it so he dont hurt himself. Your an incrediable lady!!!! God bless you too.....

[kgaccount]

@PorkChopMissPiggy We have a strong circle of support. And I'm a young mom for James. He's 22, I'm 45, so it's not like I'm on my last leg here. But i get your question. It's a valid one. A question that haunts many parents caring for adult disabled children. It takes creative planning. Fighting for what you need now and in future. There is much good to be done in community helping families with autistic adults. Have empathy for unique trials and tribulations of families with autistic kids

[ygina55]

i found these videos purely by accident but couldnt stop watching. i think its incredibly brave of u to put this info out there in the publics face. ive never dealt with autistic adults primarily but i work as an stna(cna) in a nursing home. i cant imagine the struggles that u face in daily life taking care of ur son and dealing with the publics ignorance.(i.e. PorkChopMissPiggy). i cant even believe she(it?) dared to post such things about ur child.

[XforeverlongingX]

@jazcor Being judgmental is important. It's immoral to say "don't judge". If we weren't judgmental we wouldn't have locked away Charles Manson, Jeffrey Dahmer, pedophiles, rapists, serial killers, etc. Just make sure you judge correctly, and Porkchopmisspiggy did not judge correctly. That's the way to look at it.