International Rare Disease Day 2011
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9:57
Mastocytosis - An Orphan Diseaseby Ann731023,189 views- 4:24
Can you say Essential "Thrombocythemia"?by hippygram1,482 views
- 7:17
Ehlers Danlos Syndrome and my symptomsby telephonoscope2,371 views
- 1:15
Rare Disease Day Video 2011by songtree9389617 views
- 3:52
The Most Rare Diseasesby Ubytsa8911,853 views
- 1:47
Brothers Suffer From Rare Condition Similar To Vampirismby barcroftmedia26,168 views
- 9:49
Amistad's Teeth Float and Hoof Trimby Vaire70727 views
- 2:44
pachyonychia congenitaby solilou4510 views
- 1:01
Rare Disease Day Smith-Magenis Syndrome 2011by JovialJesser2,663 views
- 3:01
My Name is Morgan and I have Cohen Syndromeby rarediseaseday705 views
- 0:43
DeVion's Rare Disease Day Video 2011by freemanmedic527 views
- 8:02
Smith-Magenis Syndrome Educational videoby TaylorBugKisses3,128 views
- 9:58
CPN Interviews Suzanne Jones of Missouriby CannabisPatientNet729 views
- 4:00
Bella's Song - I'm God's Gift I'm in His Plan Bella's Blessingsby bellasblessings297 views
- 3:23
"Lean on Me" as performed by Giovanni Lamanna, Kale Coppin, Cory Coppin, and Tony Crisciby 91Giovanni920 views
- 1:57
Histiocytosis on The Today Show (Liam's Lighthouse Foundation for Rare Disease Day 2/28/11)by geneseelove2,885 views
- 6:46
My mast cell week - How was yours?by PrettyIll1287 views
- 7:14
Our Story - Sheba's near-death experience with Addison's Diseaseby mikesheba341 views
- 1:44
Rare Disease Day 2009by vhlfa1,536 views
- 5:28
Mastopedia Welcome to New Usersby Mastopedia254 views
Great job Julie!! I read your blog too!!! Thanks!
mercyrockypoint 9 months ago
i have this disease 2 i have been having treatment hydroxy for 3years now my last count was 1000 i feel tired alot and find myself in bed alot and last 3months my left arm has been hurting alot burning pain and swelling my doc said frozen shoulder but pysio say its not im at a loss bout what to do as my doc nos best.
feelins1 10 months ago