Hey everyone! And welcome to my first YouTube video. The purpose of this first video is to shed light on a disease known as myasthenia gravis, which I was diagnosed with about a month ago.
Hi Jade, we all really apreciate your effort to let others know about MG. I do not have MG, or know anyone with MG. i NEVER had any knowledge about what it is to go though it till I heard from your video. I just read a prayer for you and may God give you better days. We all love you, love you and love you. Smile and cheer up and keep yourself motivated.
I'm very sorry to hear all this Jade. I'm a Nursing student in Florida studying for a Neuro Exam. I looked up this video to help get a better understanding of the disease.. because there is only so much you can really get from a book. I appreciate your bravery in making this video, I am sure it was hard. I wish you the very best and am going to pray for you tonight :'(
Hey Jade, I was diagnosed with MG about two years ago. Because I also have hyper Thyroid My endocrinologist suspected I had MG. She was wondering why my symptoms weren't really getting better and sent me to see a neurologist. He shocked me a few times and confirmed it for me. I've hated my life ever since, knowing I'll have to live the rest of it with this freaking disease. It's amazing how you take simple things like eating and talking for granted until you get slapped in the face with MG.
I Jade I am diagnosed at 34 yrs of age with MG. I am now 62 and have had one really bad bout a few months ago. I was not able to walk for several days and i had to get a slew of antibiotics for a tummy virus that sent this MG to attack ME! Well now I am taking more mestinon and doing far better than before. Karen
Hi Jade, I've watched ur video twice because my daughter has MG also, she had thymectomy done this Monday ,she was only 15 when she was diagnosed.she's 18 now so decided to have the thymectomy done,almost two months ago she had a MG crisis ,I'm with her at the hospital the whole time praying to God that she may recover from this illness , be positive and stay strong, today is her 6 days after surgery, still taking pain medicine I k now in my heart and mind that she will feel better.,God Bless!
I was diagnosed in April 2010 and had a thymectomy a month after in May.
My MG symptoms have not improved and unfortunately was also diagnosed with fibromyalgia and periodic paralysis this February. I do what I can to take good care of myself. I have not lost hope that one day I will feel better. I have a lot of the symptoms you describe as well as others.
I was wondering if you'll be attending The MG Foundation Annual Conference in Baltimore May 4-6? I will be there!
I recognize that you are very weak in this video. I have MG and this is exactly what I sound like when i'm having a hard time.
littleonecali 5 months ago
you are so beautyfull....
i am learning for my exam in physiology..thats how i found myself watching you.
wish you all the best!! if you coming to israel ,,dont forget to say hi!
:)
natinadav 7 months ago
Hi Jade, we all really apreciate your effort to let others know about MG. I do not have MG, or know anyone with MG. i NEVER had any knowledge about what it is to go though it till I heard from your video. I just read a prayer for you and may God give you better days. We all love you, love you and love you. Smile and cheer up and keep yourself motivated.
agumbepavan1 7 months ago
I'm very sorry to hear all this Jade. I'm a Nursing student in Florida studying for a Neuro Exam. I looked up this video to help get a better understanding of the disease.. because there is only so much you can really get from a book. I appreciate your bravery in making this video, I am sure it was hard. I wish you the very best and am going to pray for you tonight :'(
VegetaRulezxyz 7 months ago
Thank you for enduring the strength to educate the world about M.Gravis. <3 You're so brave!
SheryeS 7 months ago
HEEEEEEEEEEEEEEEEEY CHEER UP !!!
I have been diagnosed with MG on March 2008 I had thymectomy last year and the sypmtops are improving, I can do alot of things I couldn't do before
maryami69 8 months ago
Hey Jade, I was diagnosed with MG about two years ago. Because I also have hyper Thyroid My endocrinologist suspected I had MG. She was wondering why my symptoms weren't really getting better and sent me to see a neurologist. He shocked me a few times and confirmed it for me. I've hated my life ever since, knowing I'll have to live the rest of it with this freaking disease. It's amazing how you take simple things like eating and talking for granted until you get slapped in the face with MG.
regeice 8 months ago
I Jade I am diagnosed at 34 yrs of age with MG. I am now 62 and have had one really bad bout a few months ago. I was not able to walk for several days and i had to get a slew of antibiotics for a tummy virus that sent this MG to attack ME! Well now I am taking more mestinon and doing far better than before. Karen
MsHersheycandybar 9 months ago
Hi Jade, I've watched ur video twice because my daughter has MG also, she had thymectomy done this Monday ,she was only 15 when she was diagnosed.she's 18 now so decided to have the thymectomy done,almost two months ago she had a MG crisis ,I'm with her at the hospital the whole time praying to God that she may recover from this illness , be positive and stay strong, today is her 6 days after surgery, still taking pain medicine I k now in my heart and mind that she will feel better.,God Bless!
JeanLopezful 10 months ago
Hi Jade,
I was diagnosed in April 2010 and had a thymectomy a month after in May.
My MG symptoms have not improved and unfortunately was also diagnosed with fibromyalgia and periodic paralysis this February. I do what I can to take good care of myself. I have not lost hope that one day I will feel better. I have a lot of the symptoms you describe as well as others.
I was wondering if you'll be attending The MG Foundation Annual Conference in Baltimore May 4-6? I will be there!
How was the cat
13thWave 10 months ago