Severe Autism: Case That Requires Extreme Support

California Family living with severely autistic son with self-injurious behavior. Total chaos and insanity at times, but lots of LOVE.

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[NathanShadow5]

My heart goes out to you!...I too have a 'severely' Autistic son who rarely sleeps, hurts himself often by biting himself or slamming himself onto the ground and hurting his head. His arms look like someone has beaten him, bruises all over and NOW he is trying to bite his siblings and myself. Very tough job lady! I know. I live it as well!..My prayers go out to you and your family.

[kgaccount]

@NathanShadow5 Hi Nathan, yes, the rarely sleeping bit...so understand this difficult situation. I hope your son is doing well. FYI: A few months ago I found a karate helmet that has thick paddening around ears. This has better protected him during extreme head punching episodes, though these episodes have dramatically improved since July, when we begged doctor to prescribe a novel, emerging therapy: nicotine patch. Who would think nicotine would improve behaviors?

[promiseIsaih60]

The U.S. Department of Justice has handed down an indictment against a former CDC scientist who led research studies that claimed to disprove any link between vaccines and autism.According to government documents, Dr. Poul Thorsen, one of the key researchers in "disproving" any link between vaccines and autism, allegedly defrauded the scientific research community of over one million dollars. See NaturalNews*cm

[kgaccount]

@promiseIsaih60 Oh the controversy continues....I don't doubt that some vaccines can damage the brain. Or trigger seizures. However, I don't hyperfocus on vaccine damage to my son, as I have no concrete proof this caused his autism, epilepsy or self-injurious behavior. Still, I do not give him anymore vaccines, but I'm not against vaccines. I think if we could predict WHICH children or adults would have a bad reaction, that would be helpful. No doubt, some people have adverse reactions.

[promiseIsaih60]

@kgaccount Well, it's good you don't 'hyperfocus' I think it's quite a tragedy that by the age of 2, most American children receive well over 20 shots. Thank God I grew up in the 70's & we might have gotten 10 our whole childhood altogether. They are trying to get it over 50. I also remember getting all my shots as a child so we didn't get them as infants, thank God as I wouldn't give my dog or cat that many.

[kgaccount]

@promiseIsaih60 I agree, there is strong evidence that vaccines trigger severe adverse reactions. The children or adults affected by these reactions are not adequately studies. Because it sheds bad light into the safety of vaccines. That said, it is critical we develop tests to show which children and adults with autism will have a bad reactiion, and which will not. Autistics often have neurotransmitter dysfunction. Many anti--psychotics only exacerbate these reactions. We need alternatives.

[kgaccount]

@FTWinnable It's not so much that they are BS, it's that I'm so tired of all these groups that don't directly help individual cases and WASTE years talking and talking about how to cure autism. Now that is BS. We don't need cures. We need support so the autistic person can reach his or her highest potential and be free from things like savage self-injury.

[ClassyGirl07]

Autism experts aren't experts; they're just a bunch of cavalier buffoons with diplomas that say they're licensed to study whatever disease they desire. They think they know autism, but all they see is autism from the outside. They don't see the inside; they don't have autism henceforth they're not ALLOWED to say what autism feels like. Who do they think they are -GOD? I have autism, and yet they can't even tell me why I'm "not eligible for certain therapies". What do I need? A Golden Ticket?

[Azusa109]

@kgaccount Even worse is the fact that most autistic groups focus only on babies and children and not the adults.

[Elmgems]

When people say they can't understand why a parent of a Special Needs child commits murder-suicide, I explain it to them, but your videos would be a much better lesson. I'm amazed at your strength!

[user19191]

As a casual outsider, what are people like me to do for families with autism? I mean, if I knew one of my neighbors just needed someone to take care of their child or adult child to give them some much-needed relief, I would. But I feel like it's none of my business to even offer such help, if the opportunity even came. BTW, I hear the frustration in the mother's voice. Pretty understandable for a parent who feels they can't help their child.

[melindablack19]

I have a little brother who is Autistic as well, my little brother does the same thing, he tends to hit himself in the head also but doesn't have to be restraind. My little brother is 20 years of age, and yes it is hard and stressful to deal with.

[amymv74]

I just found your page and am can't wait to

Catch up. My sister is 27 and severely disabled with autism. I was blessed to grow up learning acceptance and compassion. My sister is now able to teach that to my son.

[avidgames91091]

don't listen to autism speaks because they do nothing to autism but harm it with it's ineffective and harmful treatments in thinking that they are one step closer to cure autism but in reality it would be death to the child.

[jaffles1145]

this is better than nothing