Link to this comment:
Uploader Comments (bambi1xo)
All Comments (23)
-
@bambi1xo how did you make it better? I have had it all my life and they removed my spleen, the count did go from 15,000 up to 300,000 but after 9 months it's dropping back down again. It's down to 110,000 now.
I would like to have holistic remedy and not steroids again. steroids were horrible and I gained a lot of weight from it and can't get it off. :(
kevinslair 11 months ago
-
r u serious this disease similar to evand syndrome can be treated not permanantly it actually is inhereted. i got it when i turned 11 and its horrible because i have to sit and watch kids at school have fun while i have to fail p.e. by force and my sister is going to get it and we are just waiting
paramorable 1 year ago
-
@coolasschick hey just wondering how you are today??..ive just had my spleen removed l2 months ago.
kraziestylecrew 1 year ago
-
My brother is in hospital at the moment because he had 0 platelets. This caused internal bleeding in his brain, which in turn caused his heart to stop, but was brought back to life with CPR. He had 2 brain operations and a splenectomy in parallel. He is now recovering. Something like this is deadly.
ploytoyz 1 year ago
-
I was just sore for a while. I'm more prone to infections and viruses but so is any one who doesnt have their slpeen. Be sure its what U really need and want. Look at the PDSA website. It helped me a lot. I know the hospital can be overwhelming. A splenectomy worked 4 me but now i keep worrying my ITP may come back and it can. Without my spleen it means ill be on meds my whole life & in-n-out of hospitals too. Always ask 4 more. More treatments more, more help, more support. Good Luck.
bambi1xo 2 years ago
-
thanks for replying really helped me out..im having a spleenectomy early next year..my count is 4.000 and have tried evrything im just sick of goin to hospital and not living my life..did you have any bad effects from the operation?
kraziestylecrew 2 years ago
-
did you get your spleen removed?
kraziestylecrew 2 years ago
-
So sorry it took so long. I was scared too. I was on steroids for a year and had chemo but that didn't work for me so i had my spleen removed. It was worse when i would stress out, so try to relax and always ask your Doc. if there are new treatments. Removing your spleen should be your last resort. Oh and eat as healthy as you can. Iron rich foods helped me.
bambi1xo 2 years ago
1:36Actual Epileptic Seizureby merrypresent418,772 views
Featured Video
6:26If psoriasis inhibits you from being intimate w...by eczemate28,606 views
3:08090 Henoch Schonlein Purpuraby shafiullahhameed2,128 views
4:50Hemophilia The Royal Diseaseby harmonygrl12,124 views
1:54What is ITP?by PDSAorg11,099 views
1:50How is ITP Treated?by PDSAorg5,396 views
2:01Beat Low Platelet Blood Countby LauraJeanITP7,473 views
1:31Elephant Manby ElPitou61,533,514 views
2:10Advice for ITP Patients: Andreaby PDSAorg2,398 views
2:38Samuel with HSPby StrawberrySkittles74,821 views
11:17Henoch - Schonlein Purpura - Most Important Poi...by USMLEVideos2,086 views
0:20Low Platelet Countby comptonwsu1,037 views
8:01Idiopathic Thrombocytopenic Purpuraby 49deafcancuk7,254 views
3:01Raise Low Plaltelet Count Naturally the Truthby LauraJeanITP2,291 views
7:34Heparin Induced Thrombocytopeniaby USMLEVideoLecturesCK4,374 views
7:18Brady's Storyby PDSAorg3,012 views
7:14ITP Guatemalaby DjITP28,689 views
4:30ITP - The People Are Fuc%ed (radio edit)by ITPmusic42,126 views
1:14First Rapid Test for Bacterial Contamination in...by USFoodandDrugAdmin18,188 views
4:58Clot Formation and Clot Breakdown: 2D Medical A...by MediVisuals452,920 views
- Loading more suggestions...
my daughter has I>T>P her platelet count was down to 12 border 13000 she is only 6 years old,....
ozziegirltrueblue 2 years ago
Sorry about your daughter. A tip for you and your daughter; dont stop her from being a kid just because she has ITP. My parents did and i can tell you that it made me grow up too fast and i missed out a lot. I'm 22 years old but i feel much older because i skipped a lot.
bambi1xo 2 years ago
this video is very say.
those people have it bad,if u dont have it like them u should be grateful.
i am.
bAsSmeLtdOwn 2 years ago
Unfortunately i did have it that bad. But things are a whole lot better now.
bambi1xo 2 years ago