My life with Fibrous Dysplasia
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8:03
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i have had polyostotic fibrous dysplasia since i was three in my femur mainly and i got shepards crook deformaty in my femur and first had a telescopic rod put in but then one of the wires were stabbing my soft tisue so i had the wire remved and on the 8th of november 2011 i had it all removed and my entire femur broken and completly reconstructed and know you cant tell that anything has happened im nearly 12 and walking fine and i used t be in so much pain it was unbelievable and now nothing :)
wattybabe 4 days ago
hello, how r u mate? how does it feel now?
did u suffer from any movement difficulties or discomfort before discovering the condition?
get well soon buddy!!
bodandoos 1 month ago
I am 30 and was diagnosed with fd of the frontal cranial bone at the age of 21. Had a couple surgeries..doing better the past few years...just wanted to say thank you so much for posting. Your video helps me to not feel alone.
mistresscharlie 2 months ago
I'm 15 and was a totally healthy cross country runner who ended up with what I thought was a shin splints. After several doctor's visits, lots of test and x-rays, I've just been diagnosed with having Fibrous Dysplasia only in my right leg. I have a large lesion in my femur, a lesion in my shin and another in my lower shin towards my ankle. I don't have any of the other symptoms for McCune Albright Syndrome. Thanks for posting your video. I'm trying to learn as much as I can.
imaKaiya 2 months ago
Congrats on your first video!
lestatsduchess 3 months ago
what exactly is Fibrous dysplasia of the femur. what are the symptoms of it.
patramilan3 3 months ago
I really appreciate for ur hope for life and determination. I was diagnosed with fibrous dysplasia about a year ago in my left mid shaft of humerus. I am 21 now, and I was body building before the accident happened and that fractured my humerus, and that was the only time i know that i got FD. And now I am thinking of starting body building again.. So I want to ask you if I can start lifting some medium light weights again.. Thanks
Shaluxtreme 9 months ago
Thank you for your video it I's very inspiring I'm 11 and I to have the disease let's just put it this way I now have a telescopic metal rod in my femur and a wire and 2 screws I have shepherds crook in mmy femur because of the disease thank you for tue videos you are doing.
wattybabe 10 months ago