Chronic Fatigue Syndrome - CHANGE THE NAME (ME/CFS/CFIDS)

CFS is a multi-system disease which causes extreme fatigue, muscle weakness, cognitive dysfunction, hypersensitivity, orthostatic intolerance, digestive disturbances, depression, poor immune response, and cardiac and respiratory problems. According to the CDC, studies show that disability in CFIDS patients is comparable to multiple sclerosis, AIDS, lupus, rheumatoid arthritis, heart disease, end-stage renal disease, and chronic obstructive pulmonary disease. Yet, studies have shown that patients diagnosed with "Chronic Fatigue Syndrome" are not taken as seriously as patients with the same symptoms but a different name for their diagnosis. Thus, the name CFS not only affects the quality of treatment patients receive, but the amount of money committed to research! PWCs deserve to be taken seriously, to have a name for their illness that preserves their dignity, and to receive appropriate medical care! Spread the message -- CFS: Change the Name!

Category:

Nonprofits & Activism

Tags:

• CFS
• ME
• Chronic
• Fatigue
• Syndrome
• CFIDS
• Myalgic
• Encephalitis

[venom4489]

Watching this video has brought tears to my eyes. Knowing that others know exactly what I feel, in a world of people who dont understand whats wrong with me. My heart breaks for those of you dealing with CFS, my prayers are with you always.

[photojenni]

This is beautifully done. Thanks for putting this out there. Best wishes for you and your health.

[PamelaViktoria]

When I was at my worst in CF, it felt like the worst flu ever. I have almost recovered and know that I could go back if I don't show disciple. I need to be sleeping at 10pm, and stick to the raw food diet so that my PH doesn't drop down again.

[EutuveX]

@3Sophyyy

fuck understanding..we , The Sicks are the only one who understand this Calvary..

I want research...I want to be a guinea pig... I want to donate my corpse for research ( in Italy, no medical institution wants my carcass..)

I want to end this awful "living as a zombie " ( started in 1984 )

I leave understanding to someone else..I want just to fucking LEAVE for good..!

[3Sophyyy]

@EutuveX help as in they were being treated with respect by their doctors and being believed. As we all know there IS no cure for M.E, but an understanding doctor, personally, I would class as 'help'

[PamelaViktoria]

I recovered. The highlights: Fluoride sits in your pineal gland, slowing down melatonin production. If you stop sleeping, you'll never recover. I went on the raw food diet. My PH went up to 6.6. (my lowest was 4.5 yikes! At 8 oclock, all our lights are turned off. From 10-12 oclock, your liver does magnificent work. If you have any questions, please ask. I wish someone could have told me all this, instead of experimenting over and over. Also feel free to look at my blog about my experience.

[jorgepeterbarton]

i really understand the MS comparison. I just watched a lot on MS and i'm sitting here trying to figure out what the actual difference in symptoms is.

Because for the years i have been trying to explore possibilities with my GP he doesn't even look at me or listen, at some point he has just asked 'so you're depressed?'.

I don't know if i have any of these other illnesses, no tests to confirm i don't. i went to the doctor suggesting i may have ME -now labelled hypochondriac or in denial.

[maurieer]

What a beautiful program.

I've been suffering CFs for the last twenty years while arguing with the doctors who said that i was suffering from depression.

Now I have very little respect for these doctors.

[EutuveX]

@jeager22

I hope your symptoms were caused by a different illness than this Beast... I do hope so..

[EutuveX]

@shagottaholla

I hope your symptoms were caused by a different illness than this Beast... I do hope so..

[EutuveX]

@3Sophyyy

help ? what help ? were YOU helped ? cured ?

[Hans021220]

Wonderful video!Well done!

My son is suffering from ME.