Living with Multiple Sclerosis - Tremors are almost gone!
Uploader Comments (laurenvparrott)
All Comments (61)
-
He gave me subscribtion for a drug called Symmetrel , this would make the fatigue less ,i will let you know if it makes any difference. ( it seems to be used for other purposes too) anyway the active substance is amantadinehydrochloride.
I will evaluate and let you know.
Bye for now, and keep the good work up !
Johan
-
Hi !
Have been to the neurologist yesterday.
Bad news the new drug in the form of pills was rejected by medical test commision, it was to nice to be true.. , then i asked about the tysabri : it costs 50% more than the rebif i have now and would not be accepted for my state of MS, he said only people with several relapses per year can apply for the tysabri and the PML is also a major concern to take in mind.
wow almost out of available characters ... ..have to continue in anothere reply
-
Hi !
Have been to the neurologist yesterday.
Bad news the new drug in the form of pills was rejected by medical test commision, it was to nice to be true.. , then i asked about the tysabri : it costs 50% more than the rebif i have now and would not be accepted for my state of MS, he said only people with several relapses per year can apply for the tysabri and the PML is also a major concern to take in mind.
wow almost out of avalable characters ...
There is now a Reformed Multiple Sclerosis Society that is urging for the medical community to check out Dr Paolo Zamboni's discovery that MS is caused by poor blood drainage from the brain. The answer to restore blood drainage from the brain is angioplasty. Watch the before & afters for this surgery called CCSVI on youtube- simply amazing. In just 24 hours a world of difference. Standing on one foot eyes closed in just 24 hours!
2ndSamuel710 5 months ago
@2ndSamuel710 I've made videos about this! Very exciting! Thank you for writing.
laurenvparrott 5 months ago
Hi
Im 48 and have ms for almost 3 years now and use rebif to keep it under control.
Had a hard time accepting it and had meny sleepless nights.
My look on live has changed a lot and i think you can agree with that.
I wish you al the best ,keep the head up and continue smiling. After all there are worse things that people can meet on their life.
Johan
sagaertj 10 months ago
@sagaertj Hi Johan! I completely agree with you...things could definitely be much worse, so we need to keep our heads up and continue smiling! I wish you the very best!
laurenvparrott 10 months ago
Good Luck to you !!!
RockhoundIM 1 year ago
@RockhoundIM Thank you so much!
laurenvparrott 1 year ago