Sophia's Hemangioma and Her Journey So Far

It has taken a while for me to pluck up the courage to upload this video but I have done this for all the parents, grandparents, friends and family who have a child with a Hemangioma and are spending hours searching the internet for information.

Sophia had a compound hemangioma which began to develop at two weeks old. After being seen at Great Ormand Street Hospital and being told we need to 'Wait and See' I began searching for help elsewhere. My searching became all the more important when we were told that Sophias eyesight could be compromised by the hemangioma. My research brought me to the Vascular Birthmark Foundation website and in turn to many success stories of treatment by Dr Milton Waner. I contacted Dr Waner and e-mailed photos to his team. Within a day his team had been in touch after having discussed with him the options for our case. We were told that we had a perfect case for surgical removal and the sooner the better due to the threat of sight problems.... This information got the ball rolling and I informed Dr Harper at Great Ormand Street of our wishes to travel to the USA for treatment. He supported our decision and completed all the necessary pre-op tests requested by Dr Waner. This done all we had to do next was book our tickets and arrange hospital accommodation with Dr Waners team. Within 3 weeks we were on our way...

Category:

People & Blogs

Tags:

• Hemangioma
• Birthmark
• Strawberry mark
• Vascular anomaly
• vascular birthmark

[farmerthebear]

Hi there, my daughter has a cavernous hemangioma on her jaw line. We have been told that the best treatment is to leave it alone and it will disperse its self within time, but if the growth is still there in a year or two they will look to operate, it was great watching your slide to see how your gorgous daughter has come through her op.

thanks.

[feshm23]

@farmerthebear So sweet when they fall asleep in odd places! How old is your daughter? Sophias grew very rapidly and was still in an aggressive growth phase when it was surgically removed at four months old... I have no regrets as I dread how big it would have become... God bless Dr Waner and his team... I can't recommend anyone better if you decide to go down that route...

[feshm23]

@farmerthebear

P.S. Please do not hessitate to contact me if you have any questions or would like to see a more recent pic of Sophia as she is now almost 2 and scar is barely visible. I wish you and your family well.

[AlexisKade]

I had one just like that in the same spot! When i was 15 weeks old i had it taking off and now i am 14 years old and you can't even tell i had one! Stay strong cause it gets better!

[iacunanan]

shes so cute like my daughter...she also have a strawberry hemangioma i don't know wat to do my daughter is 6months old..please help me how you do im from phillipines..

[carrieoff]

Hi feshm23....thanks for posting this, your daughter is beautiful and I know how difficult it is to live with a venous malformation. My daughter is 7 and has an internal one in her masseter muscle on the right hand side of her face. I wondered if you knew if Dr Warner treated these also? How did you contact him as he seems the best person for doing these kind of treatments and would love to be able to email him....thanks again for posting, Carrie.

[AnitaCruz94]

@gisz0228 ...I think you should talk to the birthmark doctors so they can see what they can do. If they could do something I am glad because when I was a baby they didn't want to do opperations on me since I was so young so small and so fragil. They said I need to wait untill I was 16 well I'm 16 now and I'm gonna get MORE opperations that could finally help me to look normal.

[AnitaCruz94]

@gisz0228 yes it could I was born with a strawberry hemangioma on the right side of my face from my forehead down to my cheek and yes it messed up my sight on the right side, I had major hearing lost that I couldn't really hear a sound, and I had a speech impediment that lasted all of elementry and in the first yr of middle school, and I had a smaller nostrol than I should have which made no able to breath or smell so go or not at all. I am going to get more treatment soon by birthmark doctors..

[gisz0228]

Hi, this video was actually very informative. Is it possible to share the procedure (getting in contact with doctors, etc.) and cost with me? My daughter is 4 months old and she has a large strawberry birthmark on her eyelid going into her head. I would really like to get rid of it soon as her eye is constantly swollen and doctors told me that it could affect her sight. Thanks, Giselle.