DysautonomiaMD: DO BODIES HAVE TO HIT THE FLOOR? NOOOooooooo!

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Uploaded by on Oct 5, 2009

Please go to www.clinicaltrials.gov
People have to sign up to be research subjects. DysautonomiaMD: this is the road we need to take, IT is now before us. 1 person already did: do you qualify for a study?
Disclaimer: Not intended for any one person(s). Please seek your own medical attention or in the USA, call 911. LOL DINET took GoPetition.com for dysautonomia off their list? Can I get a second confirmation on this?

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Uploader Comments (DysautonomiaMD)

  • Wow, what a difference one year can make! I have been reviewing some of your older videos and what an improvement in your overall condition. At least now you can walk, eat (and keep it down), the migraines are almost non-existent, and all the praise and glory goes to our loving Heavenly Father. This just proves how powerful prayer in numbers really is.

    G.B.U.

    Your Brother In Christ,

    Jeff

  • @jd450lh ...and I had a migraine and tinnitus in this vid/that was a daily thing. I never really knew that my neck collar was there because I had so much pain.....so one year later, ha there I was on the OR table again, getting my spine fused. Ewe. Could not swallow for 3 months that felt like 3 years.

    Next time we go out to dinner, don't give me the Heimlick Maneuver if I choke! Just wait for sign language, eh :-)....cough...choke....

    G.B.U. my Brother,

    Me

  • @jd450lh : yes, God has been so good. I hope we can continue to help others in this same effort. See ya soon, bro'!

    Your Sister in Christ,

    Margaret

  • Research, both bench and clinical trials are needed. We, People who have it, need to stand up.

    Look at the history of this video and one year from now. Let the List Grow.

    Clinical Trial of the People #1: Done by the People. And For the People. I will not lie. And use my answer here so a winderful pre-med student from a family of surgeons can make this issue clearly researched.

    I am ? Years Old

    God Bless You,

    Dr. Margaret

  • Love the music,  the message, and the video. OMG!!!!! Brilliant.

  • I'm so happy to touch your heart and your soul.

    I harbor outrage and hatred, too, just like any human being.

    It just makes me want to fight. To help. To inspire.

    To help others get diagnosed and treated.

    To save lives. To save souls. to save spirits.

    May my videos touch you in a special way, as you are the One that I picked out as my first person to talk to on YT.

    What a pleasure, an effort, what a changing world before us. We are part of the solution.

    Survivors. Fighters. LOL, Margaret

Top Comments

  • Hey Margaret! The song definitely does fit us! I had a copyright problem with a video of mine too. Youtube has a way to trace copyrighted songs - they removed the audio on mine once. Hopefully they don't do that with yours! (hugs) Hope your having a good day. Talk to you soon!

  • Self medication kills.

    Getting a professional to prescribe medical is much more safe.

    Doesn't TCH come in pill form!?

    Best to you,

    Reid

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All Comments (18)

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  • @DysautonomiaMD ~ Gotcha Sis! The worst is behind you now, thank God our Great Physician!!!

    Love ya Sis,

    Jeff

  • If you "YouTube" Search now, "d" "y" "s" now leads to:

    "Dysautonomia", "Dysautonomiamd" and "Dysautonomia POTS"...if you keep typing, you also get familial dysautonomia. The computer must be keeping track! Our numbers are growing and/or something NEW has happened! Am I the only one who noticed? I just noticed it today. LOL to all, Dr M

  • I wish we could contact this Band and that they could help with fundraisers for bed-ridden people in their youth who are ripped and stripped of their very being...until the truth is known and 'something's gotta give'. LOL, Dr M

  • Love the spelling of 'Kewl'. First time I've seen it. Thanks :-). Margaret

  • Kewl reply.

    Thanks!

    - REid

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