Chronic Illness & The Hats We Wear

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Category:

Education

Tags:

• Lyme Disease
• Bartonella
• Health
• Chronic (medicine)
• Chronic Illness
• Invisible Illness Lyme disease

[rthecrook]

I don't have lyme but I do have an autoimmune disease and this was such a wonderful video to help explain what a chronically ill person goes through and how they feel, especially how people assume you're fine when you go out when really you feel terrible. I've had a hard time explaining this to people in my life but I sent some of them this and I think it'll help them understand a little better. Thank you so much and I hope you're doing well!

[lymeguy1]

@rthecrook you're welcome. Glad I could make things easier for you. I'm doing ok, still making it through every day. Hoping to recovery completely as soon as possible. I have plans to do more advocacy work in the future. nice to meet you :)

[22anamae]

Your vid really touched me, everything you said was soooo true. You raised some good points about how others see a lyme patient, and how we see ourselves. It can be a scary and lonely disease sometimes, glad you have some family support. Thanks for sharing, your talk made me feel less alone. (( healing hugs))

[lymeguy1]

@22anamae makes me feel good to have posted this video reading your words. The struggle might be invisible, but it is there none the less. Don't feel alone, there's people all over dealing with these issues and you're not alone ! Best luck to you:)

[maddis1987]

Someone I really care about has Lyme, this video has really helped me understand what she suffers with. Hopefully it'll be enough for me to be what she needs.

Thank you.

[lymeguy1]

@maddis1987 I'm sorry to hear about the person with lyme you are close to. On behalf of them, I commend you for taking the time to learn about this. Thank You! My best advice to you is to simply ask that person how they are doing as often as you see them. When they are feeling bad, sympathize with them. Sometimes we just want someone to tell us "you know... that stinks... I'm sorry... I can only imagine how you must feel." It's ok if you don't know what to do to help. Just being there is huge!

[Ladyblues80]

Very well said. This is going to be helpful in sharing with my friends and relatives. Do you have a blog or written transcript? This is so well put.

[numaiunaltblog]

hello Will !

thank you for your inspiring video!

Greetings from Romania, we also have Lyme here and each year the situation is worsening and it has been reached epidemic proportions.

My advice is to go raw vegan and also to use coffee enemas (see Gerson Therapy). I'm dealing with lyme for nine months now and I'm feeling 80-85% better.

[mtflyme]

What a great articulation of how tough this road is in more than just the physical realm. Thank you for sharing and lending a voice to the Lyme community (and chronic illness).

[nhwhmpy7020]

Well said. My dd was diagnosed a year ago and me this year, after 10+ yrs. of being ill. Her life was halted by it, missing out on going to college and starting her life, missing 1/2 her childhood. She's still home, so I can help her out and give support. We'll start the Borrelia Series therapy in Jan. We also do classical homeopathy, which has helped, and various supplements. You hang in there and thank you for getting the word out. We know how you feel.

[OutsidrArtst]

You are wise beyond your years.

Good video.

[Reqtacular]

While I don't have Lyme disease, or any other chronic physical illness, I can relate to the sentiments in this video. I am a long time sufferer of chronic clinical depression. I think that mental illnesses can be just as serious and some are just as misunderstood. Some people I see on a daily basis would never believe I am depressed, they just think I am tired or something. Some that I have told simply drift away over time as they don't want to be around me.