August 09 Hydrocephalus Arachnoid cyst Update.

So a month on from my last video.
In june I had a shunt malfunction which resulted in me going shunt free and having a craniotomy with a fenestration of my arachnoid cyst.
Unfortunately, this procedure was suppose to leave me shuntless for good, but after just 3 weeks, the pathways that were made failed, resulting in high pressure again, needing the shunt to be put back in.

This video was made a month after my most recent operation :)

Category:

People & Blogs

Tags:

• craniotomy
• fenestration
• blag
• girl
• jade
• lucas
• great ormond street
• east surrey
• hospital
• gosh
• surgery
• operation
• surgeon
• granuloma
• shunt
• VA
• VP
• hydrocephalus
• arachnoid
• cyst

[xG1GaHuI2tZx]

I just turned 20 a few days ago, I also have hydrocephalus. The shunt that was put in me was done when I was 7 days old. Now 20 years later I still have the original shunt from '91, The doctors are extremely amazed that I haven't had a single flaw with the original one.

[martinezeven]

hey wats up man ma name is evan i am 16 years old and i too was born with hydrocephalus the doctors told ma mom that as i grow up that i wouldnt be able to walk or talk and that my brain would take very little memory meaning that i would have a long time to learn something and i thank god cause i could walk and talk and do many other things i havent had any surgerys since i was six years old i am very thankful of that i cant say im scared but im hanging there 

[Bassplayer600]

Hey my name is george and i am 16. Last year i had eight brain surgeries and the last two were on my birthday. The unique thing is i am an identical twin and my twin brother does not and was not born with this condition. From all my experiences i have learned how to deal with life and Im very happy I am doing better. Thank you for posting this video it helped. i also have Dandy walker syndrome and barely a little autism but you would not be able to tell if you saw me face to face. Thank you.

[Terry467]

Well done & congratulations on your mature outlook towards this problem. My wife is,right now, in Helsinki hospital being treated for the very same problem, following a cerebral aneurysim during our recent cruise around the Baltic. She had endoscopic surgery today to create a drainage hole in the ventricle of the brain to release the fluid.

I love the way you take to task, the mindless morons who comment on other people's suffering. Stay positive & go get em girl.

Good luck,

Terry467

[LegalizeSam]

darling, your story is incredible. i hope you feel well soon.

[gulfwardoc]

Thanks for getting the word out ive had 4 surgeries in the last 6 months for mine doctors are having a hard time dealing with me lol

[dayofthedead55]

Ur a ture Sweetheart!! going tho all This crap and Puting it on video to Show and make People Understand This sickness

I also have This cent Birth and I never had a Shunt Ever or Noting and Now am 22 But always I like How Ur Puting Everything On video soo People can Understand...

i hope Everything Gos Ok with you just sad That great person is Dealing with this ..