Living with Hemophilia
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@mskater5 great suggestion, like it is that easy.
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@beedbox yup
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@Wilsondano1 And why you think so? Are you really saying that heamophilia isn't a real disorder?
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not a real disorder
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@skulljazz Whats your last name?
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this is why my major is genetics
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My name is Tyler, I'm 16 , I live in Utah, I have hemophilia A, It can be very hard some times.
If any of you want to talk E-Mail me at: tylar0x2@yahoo.com stay strong guys!
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@caindlazzuk Actually my parents discovered that i`m a hemophiliac back when i was 4 .. now i`m 13 , and i just have to put a canula every time i bleed.
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@mskater5 I truly wish that such a thing were possible now. Perhaps, sometime in the future, a tablet factor may be possible. I'm not sure which factor you are lacking, but factor VIII can be given via the nose in an inhaled medium. If you use factor VIII, you should speak to your haematologist about nasal infusion rather than intravaenous infusion. I hope this helps.
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@chiperone3 no there is not.
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They need to invent a pill for Hemophilia with the factor in it, that way we dont have to infuse every time. Thumbs up if you agree
mskater5 1 year ago 21
; this is not 100% true if you had severe haemophilia (like me as well) you would be born with visible signs (bruising, swelling etc) or at least show them within days. BUT! some haemophiliacs can have the disease all there life and never need to-do a treatment or feel the effects (ie only missing lower then average factor levels), some only a few treatments in there lifetime and others every other day just for prevention and extra of top, who like me have very low levels.
caindlazzuk 1 year ago 7