Spinal Muscular Atrophy - In Memory of Lily 6th Bday
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Uploaded by Shira2 on May 13, 2008
This video is posted today in Memory of Beautiful Princess Lily who died yesterday following a 7 year battle with SMA. We love you Lily! You and your mommy have a special place in our hearts.
Uploader Comments (Shira2)
All Comments (15)
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@Shira2 I'm sorry for your lost and the video is so heartbreaking for you but she is a fighter.
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such a pretty girl!
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well, that girl Lily is only one amongst many children who die every year from the same disorder. If every time there is a child or an young adult people had to be sorry and cry people would never stop crying then. There are life insurance that help compensate for the loss of loved ones and there are solicitors who can help file for medical malpractice if any was done when she died. If this is anything to do with people acting about words then what's left for them?
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IM SO SORRY! MAY GOD BLESS UR FAMILY
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We all need to pray and ask God to grant knowledge and wisdom to people who are researching to find a treatment/cure for this disease. Let God's love and power be manifested and seen through medical science.
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Absolutly Beautiful so sorry for your loss. We lost our son 10 Years ago at the age of 7 years 10 months with SMA type 1 we still hold him with us everyday God Bless
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Watched Lily's video. She was so precious. Sorry to hear that she passed. It is like watching my own everyday life with Sky. She has Ataxia. 18 months ago she was a perfect 3yr old. Now she can barely move or speak. Swallowing is getting hard too. She doesn't have much time before it takes her heart and lungs. I also have videos posted of her if you search Sky Ataxia.
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what is the disorder and how does it affect you
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SHIRA2
I am sorry you lost Lily a year ago.
I just saw your video for the botton I asked
about.
larbacmc 2 years ago
Lily is a child of a good friend of ours and I posted a tribute to her. My daugh
Shira2 2 years ago