Living with PML - 10-24-10

Angela speaks from the hospital about her PML diagnosis.

Category:

People & Blogs

Tags:

• Multiple Sclerosis
• Tysabri
• PML

[stuart1959]

Angela -- I to am sorry to read about you and the PML. I will be posting this video to my blog: "Stu's Views & MS News" and it will appear in our next e-newsletter.

Your Message is Important as so, I will share it.

For anybody reading this message and not receiving our weekly e-newsletter visit our website to register: msviewsandnews(dot)org

Meanwhile - I hope you have gotten better with your health.

I too am using Tysabri and will be getting my 27th infusion in two weeks...

Regards

Stuart

[angelusa73]

@stuart1959 good luck with your next infusion. Please, be very careful, pay attention to to every little new and old symptom. Nothing IS TOO SMALL and not important and, plesase, make sure to write evererything down and let your dctor know about everything. he might not know muvh about the PML itself but he might be able to help you and get things started in the right direction. Believe in yourself and keep being strong, you will be n my prayers and you will go on well, good luck and take care

[angelusa73]

@stuart1959 can you please write me privately to explain me this a little better? I am too too "smart" at the moment and I need to read your words again and to think of your words.I will answer you as soon as I can, I promise. I am not as good as I used to be with things in the past, but I continue to try and my best,

hugs t all,

Angela

[xybiljan1232]

GOD LUCK COUS I NOW WHAT YOUR FILLING COUSE MY SON HAVE IT

[angelusa73]

@xybiljan1232 I wanted to write you in a private way, but i can't find a way to do it, so I am sorry but I just left you a message like this here on this, i hope it's ok...i wanted to add this that i wrote before and wanted to copy here in a second comment:am so deeply sorry to read that your son has it too, How is he doing at this point? i might be here, still alive, to be able to bring this message to people: it

[angelusa73]

@angelusa73

is very hard, but we can be stronger than the aweful PML and, while fighting as hard as we can, we can win this and show others that keeping hope alive is very important. There are times when I want to give up too, so I understand how that's possible, but I try to go on one little step at the time Good luck to you and your son. You will be both in my heart,

hugs,

Angela

[angelusa73]

@xybiljan1232 i am so deeply sorry to read that your son has it too, How is he doing at this point? i might be here, still alive, to be able to bring this messah\ge to people: it is very hard, but we can be stronger than the aweful PML and, while fighting as hard as we can, we can win this and show others that keeping hope alive is very important. There are times when I want to give up too, so I understand how that's possible, but I try to go on one little step at the time Good luck

[angelusa73]

@michael88863 i know what you are feeling and it's hard to keep the faith alive when you are almost killed by the MS drug that many neurologists push you to take and push until you take it. I can tell you that my faith, just like my body, has been suffering greatly because of this...what happened to me was horrible, much worse than the disease, even if I had an aggressive fform of itML was worse than anything I ever had to go through in life...I wish I wuld know why God is like this

[michael88863]

@dovemaiden - how can you believe in God? why did he create ms? why did he then create PML? Are you stupid? seriously

[dovemaiden333]

Dear Angela, I will be praying for you. I took Tysabri for about 33 doses before I stopped because I was afraid getting PML. I am so very sorry that you got the PML, you are very fortunate though to be alive. May God bless you and keep you safe. You are an inspiration to all of us with multiple sclerosis. You have such a sweet spirit, it comes through so clearly in your videos, you are an angel of hope.