Sarah's Story: Crouzon Syndrome

Crouzon Syndrome is a disorder affecting approximately 15.5 children in every million births. Sarah has had multiple surgeries at the Center for Craniofacial Disorders or Children's Healthcare of Atlanta to help her health, functioning and quality of life.

Category:

Education

Tags:

• Fernando Burnstein
• M.D.
• pediatric hospital
• crouzon syndrome
• breathing problems
• bones in skull
• hypertelorbitism
• protrusion of the eyeballs

[HadynsTVdoc]

You look lovely! :) I have my own documentary on my channel, I thought about making my own documentary and to tell people what experiences I've been through. Have a look :)

[robinwaldo1]

HELLO MY NAME IS ROBIN, MY DTR NAME IS TANISHA AND SHE;S11 YRS OLD WITH CROUZONS SYDROME.SHE HAD 6 CRAINIOFACIAL SUGERYS SHE ABOUT TO HAVE A MIDFACE ADVANCMENT, SHE GET STARED AT AND TALK ABOUT IN SCHOOL.SHE IS A AB HONOR ROLL STUDENT, SHE CARE ABOUT EVERY1 AND WOULD BE A FRIEND TO ANYONE. I WOULD LIKE FOR HER TO MEET MORE PEOPLE WIRH THIS CONDITION OUR PHONE NUMBER IS 336-883-6047.PLZ GIVE US A CALL THANK YOU.

[Craniomommy]

Sarah you are beautiful