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Richard Johnson - Betty Jane France Humanitarian Award Finalist

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Published on Oct 1, 2013

Richard Johnson (St. Johns, Fla.) has more than five years of experience working with charities to organize events and fundraise for children with Alpha-1 Antitrypsin Deficiency. A tireless advocate in raising awareness and funds to get desperately needed help for children with Alpha-1, Johnson has organized and hosted an annual "Friends for a Cure Golf Tournament" in which the proceeds benefited Alpha-1 Foundation research programs. To set an example for others and reinforce the importance of family testing, Richard helped launch the Alpha-1 Foundation's "It's All in The Family" campaign by creating a video testimonial with his two children, who were diagnosed with the genetic condition in 2008. He has also been active in the Alpha-1 Kids program by developing educational materials and supporting parents with children who have recently been diagnosed.

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