Bandages Every Day
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7:00
Dream Home, Man who Loves me, Great Friendsby butterflyskyn301 views- 5:37
EB Survivors Campby directobot878 views
- 2:49
Anita purple SLC + crutchesby brokenbabes49,955 views
- 2:46
Recording Todayby butterflyskyn327 views
- 3:47
Mrs. Ohio International Talks about Epidermolysis Bullosaby rockwriter1,308 views
- 5:53
Debra of America: 2010 Patient Care Conferenceby Debraamerica769 views
- 7:40
The Making of 'Annie' [1982] - Part 1 (CC)by davideskimo94,317 views
- 9:44
Huy, during EB bandage change, difficult to watch!by helpinghow4,834 views
- 0:49
The Happiest Moment in Human Historyby brannth169,761 views
- 5:59
What's Happening with Medicaid?by butterflyskyn1,047 views
- 3:21
Tell Me a Story: Battling a Skin Disease, One Bandage at a Timeby CincinnatiChildrens3,229 views
- 0:55
ectopia cordisby ananyokanti7,613 views
- 3:44
About DebRA - my chosen charity while competing in the Clipper Round the World Yacht Race 09/10by MissDellarella299 views
- 6:37
After my dr visit--doctors don't read patients charts anymore?by butterflyskyn320 views
- 4:41
Stem cell 101: What is a Stem Cell?by UofMAHC1,204 views
- 3:57
EB- Tribute To Coreyby profilesincaring2,740 views
- 8:44
TELETHON 2009 per i Bambini Farfallaby DEBRAITALIAONLUS6,037 views
- 9:27
National Epidermolysis Bullosa Awareness Weekby liberty196029,538 views
- 2:09
CHILD ABUSE CAUGHT ON TAPEby stopevil1,889,191 views
- 7:44
GH 06.13.01 - Sonny questions Angel then thinks she's Carly due to hallucinatingby kopfgeschlagen2,104 views
Jamie, You are such an AMAZING woman. I can not even begin t imagine what you have to go through and have gone through. I had never heard of EB until I met Stevie when I was looking for makeup videos. Since then I have tried to learn more and I have to say, I think this is one of the worst disorders I think I have ever heard of. What you have to go through from the day you are born is just so unbelievable.You are a TRUE INSPERATION. I Love your spirit girl. Take Care, Wendy
Tresisme1 1 year ago
Great video Jamie!
KangaGridley 1 year ago