I was really touched by Jon’s story. I am an undergrad at the University of Texas at San Antonio and have done a lot of research in neurophysiology; specifically, Sudden Infant Death Syndrome (SIDS). When I saw this video last year, I had decided to complete an Ironman and have been training ever since. I am now signed up for the 2012 Ironman Western Australia and watch this video every day before my workouts.
His story has helped me push through some hard times and has also inspired me to get a masters, then a PhD in the field of ALS research. Funny how someone you have never met or never will meet can inspire someone they will never know. His story and family have changed my life. Words can’t express my thanks to him and his family.
I was so toucked by your story I started training and completed the Ironman in Arizona 2009. Then my best friend just diagnosed with ALS just 2 months later.. He passed away September 2011. I wrote a song for his memory. Thanks for posting this.
"I first saw your incredible story while watching the 2005 Ironman. As an avid baseball history fan I consider Lou Gehrig one of the greatest because he was likely the first to give ALS a voice. Your voice has been much louder and stronger thank goodness. The words THANK YOU are not enough to express how you have opened eyes and minds about ALS and hopefully soon there will be a cure."
“Jon felt strongly that the multi-sport community would play an
important role in finding, at minimum, an effective treatment for
ALS at its early stage,” said Bob Blais. “This study hopefully will
lead to that effective treatment.”
spinathon 1 month ago
@potentialtrainwreck so very sorry for your loss...now you fully understand how horrific this disease is...bmom
blazemanmom 2 months ago
I was really touched by Jon’s story. I am an undergrad at the University of Texas at San Antonio and have done a lot of research in neurophysiology; specifically, Sudden Infant Death Syndrome (SIDS). When I saw this video last year, I had decided to complete an Ironman and have been training ever since. I am now signed up for the 2012 Ironman Western Australia and watch this video every day before my workouts.
quibix1 2 months ago in playlist Ironman Training
His story has helped me push through some hard times and has also inspired me to get a masters, then a PhD in the field of ALS research. Funny how someone you have never met or never will meet can inspire someone they will never know. His story and family have changed my life. Words can’t express my thanks to him and his family.
quibix1 2 months ago in playlist Ironman Training
I was so toucked by your story I started training and completed the Ironman in Arizona 2009. Then my best friend just diagnosed with ALS just 2 months later.. He passed away September 2011. I wrote a song for his memory. Thanks for posting this.
potentialtrainwreck 5 months ago
@blazemanmom @jazzie...he would have been 40...typo...
blazemanmom 6 months ago
@JazzieLuvs Thanks so much for rememberin Jon...his Birthday is the 30th...he would have been 49 yrs old..
Nary Ann
Jon's mom
blazemanmom 6 months ago
i miss him he used to be one of my teachers....he was a great man and still is......love you blazeman
JazzieLuvs 6 months ago
"I first saw your incredible story while watching the 2005 Ironman. As an avid baseball history fan I consider Lou Gehrig one of the greatest because he was likely the first to give ALS a voice. Your voice has been much louder and stronger thank goodness. The words THANK YOU are not enough to express how you have opened eyes and minds about ALS and hopefully soon there will be a cure."
Mary Ann Pults
spinathon 6 months ago
There is progress in the war on ALS.
Think Blazeman would have liked this www3.nhk.or.jp/daily/english/10_06.html
Peekingduck 8 months ago