Tardive Dyskinesia in young child after stopping Invega

My daughter, age 5, two days after STOPPING an antipsychotic. She developed Tardive Dyskinesia (TD) after the antipsychotic, called Invega, was stopped.

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People & Blogs

Tags:

• EPS Invega Withdrawal
• EPS antipsychotic
• child EPS
• child antipsychotic
• antipsychotic withdrawal
• child tardive dyskinesia
• tardive dyskinesia
• movement disorder
• invega extrapyramidal symptoms
• antipsychotic risks
• Invega
• antipsychotics

[korvinanna]

My son has this after stopping Invega. How long will this last? The doctors say it is withdrawal, but it has been a week and he is getting worse, not better.

[TheeBonnis]

@korvinanna It can last for MONTHS!!! I would not accept a "wait and see" approach. Chances are, your son was taken off the Invega too quickly... as contrary as this may sound, ***IF*** what is happening with your son is withdrawal dyskinesia, the BEST thing to do is for the doctor (and only the doctor) to put him on a VERY low dose of Invega then reduce it very, very slowly. Please consult your doctor before making any changes--and always know that you can request a second opinion!

[dulCISSIMA1]

is she going to be ok???

[TheeBonnis]

@dulCISSIMA1 Yes, she has recovered and the movements are hardly noticeable at all. But I leave these videos up for other parents, patients, professors, pharmacists, nursing students, etc as a learning tool.

[dulCISSIMA1]

@TheeBonnis oh i am so glad to hear it!!!i hope she will be very healthy and happy in her life!!!

[TheeBonnis]

@dulCISSIMA1 Thank you, your words are very kind & appreciated. Blessings.

[akkleinhenz]

I am so sorry that this beautiful little girl has this struggle and has needed these meds. She is fortunate to have a loving parent who is there for her. Thank you for sharing this video.

[M1thotyn]

@Italianzebe Dyskinesia is the involuntary movement, tardive means that it has a belated onset. TD affects every part of the body, even ones that aren't moving, because it's caused by a global dysfunction of the entire nervous system due to an enlargement of the basal ganglia (which is permanent, even if movements decrease or stop, the structural damage remains and can be seen even decades later at autopsy). I don't like how so many people think that it just affects the tongue and jaw.

[Vulcanicer]

your daughter is so nice and its sad to see. I have schizophrenia myself and they gave me a injection with what I think was risperdal consta and I got acute dystonia because of overdose or allergy to the medicine. I could not talk, eat, walk or let my body relax for several days. My body was like a bow and it was hell on earth until they gave me some medicine that fixed everything. I still have schizophrenia and I use Seroquel, but I don't have any symptoms now and I am enjoying life.

[Sammygirl1231]

Is she schizophrenic?

[philycheesesteak127]

This is breaking my heart. Isn't there anyway you can get a claim for this? I know mass people are suing the company who makes Seroquel for this same side effect