Fighting the Stigma: Pain in Sickle Cell Disease - Elise1

This video describes the on-going struggle of people who suffer from sickle cell disease. This is Elise Part 1 and is 1 of 12 videos. Video is sponsored by Dr. Sohail Rana M.D. of Howard University Hospital. Please visit http://www.curesicklecelldisease.com for more information.

Category:

People & Blogs

Tags:

• D.C.GAPS
• Sickle
• Cell
• Disease
• Documentary
• Pain
• Voices
• Inspiring

[GNCJ4427]

i was born with the same thing .. (im not lying like some of you..)

And the doctors and nures dont make it any better, all they do is drug me up with morphine and other narcodics until im to sleepy and drowzy to think about how much pain im going through..they do that every 3 or 4 hours around the clock ... SOME PEOPLE DON'T UNDERSTAND HOW BAD THIS CRAP HURTS!!!!!!

[lightswicth1]

i have a sickle cell anemia tooand im always havin problems at school because im sickk so much and miss alot any advice?

[trini4eve9]

@chokoboy5578 ok but still mostly present in african americans though. thanks for your rersponse tho. have a good day

[chokoboy5578]

but if the person they had the relations with also have the trait and they reproduce offspring then that offspring has a 25% chance of obtaining sickle cell disease granted if both parents just have the trait if both or just 1 parent has the disease the chances becom higher now an example my parents both just had the trait my mom gave birth to 5 children 2 (including me of course) got the disease 2 got the trait and 1 nothing and the 1st child (born 1972) died from the disease

[chokoboy5578]

@DBJCRoyalty well im guessing your asking how do people get sickle cell well it comes from your parents who both have to atleast have 1 sickle cell gene this is called the sickle cell trait having 2 is the full blown disease now the trait usally has little to no syptoms but can be carried in a person and if that person has (sexual) relations with another person they do not transmit it like an STD (continued))

[chokoboy5578]

@MsLafaye100 also i just want people to know that its not just a pain disease its MUCH! more than that i know that you know that but most sicklers just mention the pain (and the pain is bad enough) for example my puberty/growth (as im sure yours is or was) is stunned so at 19 i look (most people guess) around 14 or 15 and people sometimes guess younger and that is the easiest of the symtoms i also would like to talk to you further cause i dont meet many people like me

[chokoboy5578]

@MsLafaye100 hello im a 19 year old male also with sickle cell disease and actually going to a sickle cell awareness meeting in the bronx this morning but im just wondering do you have other symtoms cause i have most of the things that can go wrong with you having sickle cell for example my hip collapased and couldnt walk for about a year and now my hip is metal and it would be impossible to name all the things wrong with my body because of sickle cell in one comment

[chokoboy5578]

@trini4eve9 and also ive met white people of usally mediterranian (ie greek italian etc) decent with sickle cell so so your observation is only partially correct

[chokoboy5578]

@trini4eve9 what you say about sickle cell is some what true but 1 not mostly present in african americans which is (for some stupid reason) used as a broad term for black people its mostly present (but not exclusive) to blacks in general but the origins are in mediterranian areas such as north africa italy and so on because malaria was prominant in those areas and the sickle cell trait (or the single sc gene) and because people had kids with other people with the trait the disease developed

[DBJCRoyalty]

@4liferudy what is the transfer factor?

[cherylleone]

@lightswicth1 ....I have nothing new---carry your water,drink,drink,and drink.......take the meds soon as the pain begins to try and take the edge off..... and pray if you are

the praying type.....reach out and get emotional support,talk about it.

[MsLafaye100]

I was born with Sickle Cell Anemia as well. I'm 25 years old. The pain is very bad, it's undiscribable. I'm on alot of pain meds as well, I take Oxycodone, Morphine and Motrin. When I'm in the hospital or ER they give me dilaudid through the IV. This illness is very serious and very painful.