spastic paraplegia and me
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Our family has the hereditary (HSP), genetic, and the test runs a few thousand bucks. It's been in our family since 1805 (cousins married).
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I was just diagnosed with a Motor Neuron Disease Called "Primary Lateral Sclerosis" which is very similar to HSP. Let me tell you, at 41 years old, this disease SUCKS! ANYONE who makes fun of others who have a disability, illness of any kind is a fuckin creep! People treat me different because of this. We don't want NOTHING from you. Treat us like a normal person for piss sakes... Beware, that lifelong illness can affect anyone including YOU! So think twice before you make fun of others! KARMA
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I was told it was hereditary, the dna shows it is very close to ms (multiple diseases) Ihave pain in legs especially at night. Poor bance and fatigue during the day. Stress makes it worse.bright lights and heat cause symptoms like seizures take lorazepam .5mg Alprazolam .5 mg for night But pain is getting worse so who knows Baclofen made it worse dna test didn't help at all, just depressed you because your told yep you have it but nothing we can do. B12 and fish oil may help try anyth
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Excuse my ignorance, but is spastic paraplegia strictly hereditary? Are there other forms of this disease?
Thank you.
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i have HSP aswel...its hard 2 explain to ppl wt u have n wt u go thru on a day 2 day basis :(...where im from Anglesey my family r the only ppl that have it...i just keep positive :) xx
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I have spastic paraplegia also.. so bad I'm now confined to a wheelchair 24/7 hang in there young lady!!!
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Hang in there, all I can do is pray for you and others that we can have the strength to get through this and be comforted during the hard times. Your a brave one alright! God bless!
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I thought I was only one. Paralyzed from just below chest. I'm incomplete so I do have some feeling and movement. I'll get a kicking spasm, where it won't stop unless I work with having a bowel movement. I've been given shots of Valium(diazepam) and dilauded. But it still won't stop unless try rect. Stim. And used to have to use suppository's. It keeps me from going out and from sleep. Baclofen, diazepam, Ativan are meds I'm on. I had colostomy and they went away for a month. It stopped workin
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i suffer from spastic paraparesis and it`s horable trust me , the pain is enormous
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im typnig with my forehead. thakouy fore the share xx
she cannot help it so shit it you unkind monsters
tzhaarownage 3 years ago 3
hey you guys should not make fun of others i don't find it funny at all there are funny things on your tube but this is not one of them so take it easy with the insults
lazydalion 3 years ago 2