Gianna Seizures (8-13-09)
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aww praying for u guys
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wow! I have seizures as well, but usually have grand mal......you can see a video of one on my page.
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she doesn't like those socks does she? cute kid though!
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i also have seizures too
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WOW..Meds not working...have you gone to a different one? thank you for this informative video with us...Precious, beautiful girl, BTW!
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Thank you for sharing this video. I have seen many CP kids done that before and never knew that was considered as a seizure. Learn something new everyday. Very informative!
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no she DOESN"T like those socks. It's a problem for us. I used the socks b/c most of the arm braces just don't work or restricts the hands. I"m writing this cause wanted to tell anyone watching having children with same mouthing problems that these new braces work great. They are from Benik (can go to their site) and it has hinges (her most recent videos --she is using them) she's had them for a few months and we were hoping it was a habit but as soon as she gets them off she mouths again.
Nataliedragotto 2 years ago
this med actually helped if you can believe it. --in the gist --she as first dx as Lennox gastaut-seizure changed --then did a VTM-show'd EEG as infantile spasms but not having clonic tonic. (before having EEG as Lennox but having a-typical absence with clonic with others). since EEG showed infantile put her on this med. was normal as having seizure every 2 minutes with med every second (as shown). after 10 days off (on for 14 days then decrease for a few weeks-- she has improved -
Nataliedragotto 2 years ago