Recovery after coughing spell after eating Baby

Castalia, 11.5mo, esophageal atresia/TEF, GERD, aspirations, ROP, PDA, IVH

This is her recovery, she had been coughing staight for over 5min. You can see at 2:20min what her dry spells are like as she is having a small one.

She had a little bit of coucous with sauce (which she had the day before and did fine) but she has the same dry spell after milk or pureed food.

Im still not sure what it is. Me moved her prevacid solutabs from 7.5mg to 15mg and it helps, as she was having dry spell with pretty much every meal aside from her 2am milk that she takes while sleeping with no issues whatsoever.

She does aspirates so we thicken all of her liquids to a honey consistency. She also has tracheomalacia (floppy airways)

If anyone has a comment about what else it could be or has a similar stuation, please contact me!

Category:

Education

Tags:

• ea
• tef
• atresia
• gerd
• reflux
• GI
• baby
• coughing
• feeding
• issues
• aspirations
• tracheomalacia

[vouvoune]

First of, there is only one i in "idiots." ,Mr. Pediatric expert, if you had read on, she had a Esophageal Atresia and a TE fistula (GI birth defect: her esophagus was not attached to her stomach), had surgeries and many complications leading to these difficult feedings which as you can imagine are just so much fun for us too...How interesting, looks who sounds like an idiot now?

[aaalysssaaa]

@vouvoune Technically there is 2... just saying.

[vouvoune]

@aaalysssaaa I should have written, "there is only one i after the d in idiots", you are right. I was just so angry that here I am posting such a painful video to try to help others who might be in our shoes. I am dedicating my life trying to figure out what's going on with this baby who has a ton of health issues and that no doctor is able to help...So, i wasn't thinking straight. But yes, "technically" you are right.

[sethmeistergee]

I had tears in my eyes watching this. I hope you find your way throuh this terrible ordeal. My heart goes out to you guys!!!

[aaalysssaaa]

@worldys Well I do know how hard it is. It's very frustrating as a parent to deal with anything like this. It's really hard for me when people question my son and ask "why is he puking" "he spits up a lot" "you're feeding him to much". It gets very stressful, as I know I am doing everything competely right, it's just a medical condition that I cannot change. I bet you're both really strong from this though.

[worldys]

@aaalysssaaa Castalia is now 2yrs old and still on 30mg of prevacid so we are still dealing with it and still will for her whole life probably, it is just because from her surgery, her esophageal muscles are paralyzed in soem places and so it doesnt move probably. A lot of her food ends up it her nose which is also why she coughs. The best thing we did was to get her a wedge to sleep on (Tucker wedge and now COmfortlift) and kept her reclined at all times, she never had a stricture to date.

[aaalysssaaa]

@worldys My 8 month old actually has GERD (acid reflux). He spits up a lot, it has died down, but not as much as I thought it would by now. It's really hard for us to do a lot with him. It's hard to explain to other people that I, as a parent, am not lazy because I put my son in his play pen to lye down after every bottle or feeding, I have too, so he settles his food and doesn't puke. It is really hard, so I do see where you are coming from. And my son coughs a lot too, because the acid burns.