CCSVI 9 weeks post procedure

My update nine and half weeks after balloon Angioplasty.


CCSVI - Australia Facebook Group
http://www.facebook.com/#!/pages/CCSVI-AUSTRALIA/263307140799?ref=ts

haha (please ignore phantom credits!!)

Category:

People & Blogs

Tags:

• CCSVI
• Multiple
• Sclerosis
• Venous
• obstruction
• narrowing
• stenosis
• MRV
• Balloon
• Angioplasty
• Venoplasty
• Zamboni
• Kerri
• MS
• Walk
• Melbourne
• Sydney

[chowdershop]

Hi Kerri. I'm in the States. Had th procedure 5 days ago. Wanted to comment that I had NO testing beforehand. IR stated you really couldn't tell about blockage til you got in there to do it!! So, please don't rely on tests!

[kezzcass]

@chowdershop That is a really good point, it is only good as a screening tool but you can't rule out CCSVI as there is the possibility of a false negative. It is so operator dependant.

[lawrence181961]

I had one friend go to India for this treatment with a big cost to bring home with him and he said himself that he is no better in the long run,and I agree with him that he is no better so I think I will just old off on going down there myself at the moment..I need to see some better results before I go...

[kezzcass]

@lawrence181961 Yeh I am inclined to agree to be honest (easy for me to say). I don't think I would be going to India either. I have had terrific results don't get me wrong and I recommend it for everyone to at least get tested and if CCSVI is found be treated. I just feel follow up is very important, a scan at least a few months later to see if the blockages have renarrowed and further treatment if needed.This is not a one stop fix it needs monitoring. Best to fight for it at home :)

[kezzcass]

@sorinlisboa79 9000 Euros is a lot of money! I can't advise you either way. I will say, if it were me and I didn't feel like I was progressing, I would wait it out a little longer and see if the research comes through soon. Once it is validated I am sure the prices will come down. You are right, it is just an angioplasty. It should not be costing so much money to have done. People have this done for different reasons everyday and it is a shame because someone has MS it is this expensive.

[sorinlisboa79]

@lawrence181961 @lawrence181961 I am quite in the same situation as you i have been diagnosticated with ms for an year now and fortunatelly i can still do a lot of things, i can´t run anymore though, but the question is the same: should i pay that much amount of mony for the ccsvi? i mean is just an angioplasty after all. i live in portugal and the doctors here say that ccsvi is a scam. there is a clinic here though that do this procedure but the cost is like 9000 euros. that´s a lot of mony

[sorinlisboa79]

@lawrence181961

[wordey123]

@lawrence181961 He might have cross reactoins with food causing his MS.. I've heard of peopel having gluten or dairy intolerences and removing that food from their diet only to find that their nerve problems disappered. Artifical sweetners are killers too, reallly messed me up with nerve problems, thankfully they werent permant.

[rebecawatson57]

I was diagnosed with MS back in 1983.Recently I came across ccsviclinic.ca. They are screening in Fargo, ND. Called (404)461-9560 and spoke to Nurse Lisa. Their Liberation Package includes pre-op video consultation with their doctors, flight costs, visas, accommodation within their hospital premises. The treatment includes stent, medications, reports & post-op followup for next 6 mths. Email:apply@ccsviclinic.ca. Getting liberated mid-November. Thankful to CCSVI Clinic for making this happen!

[lawrence181961]

I agree with you,I think if a person could not walk anymore it might be worth taking the chance of going there but it also comes with the big exspense so I thinf I will just wait awile till it comes to Canada.Lets keep in touch if you do not mind.