Prader-Willi Syndrome

A day in the life of Sonny, my son, who has PWS, a life threatening birth defect that affects appetite, muscle tone, behavior and general health.

Category:

Education

Tags:

• PWS
• hungry
• prader-willi
• syndrome
• public
• service
• announcement

[Zoeyness1]

i feel so bad yet its so common i worry for my future children i am only 14 making this comment but i am now i wonder what if my future children had this crying for food i mean i eat when i am bored but to not feel full would take a look at myself and say imagine doing that but 4x worse and never feeling full i mean it scares me and i love food but now imagine loving food but the feeling being so intense that he just cries and pouts for food and hearing him cry every time he wakes up for food

[videolavivi]

I am a teacher who is working on my Special Ed credential. I have had the opportunity to work with a child with PWS and that is why I chose to do my research paper on this syndrom. My prayers for strength go out to you and everyone who has disabilities. My nephew has DS, and I know it's not eassy...but we can do all things through Christ who strengthens us. Keep the faith!

[michaelphillips6]

You're doing an excellent job with him, an excellent job.

[MissDmK87]

i feel for u so much i work for a livin helping ppl with pws with healthy calorie controled diets and fun excercise, we have successfully help 5 individuals to maintain a healthy weight and i could see myself working in no other place, yes it is hard sometimes but we are all trained in dealing with tantrums and behaviours, the ppl i work with are very happy with progress they making and we've helped get some of them down to there ideal wieght for there hight and age. so pleased with them!

[elbasi13]

Hello, I live in France and I have 1 nephew who is affected by this syndrome:it is 23 years old andTheir parents are discouraged .................I think it's too late for him infortunatly;If not could you please indicate me the way to save him

Thank's for him

[NinjaShaNaNinNa]

:[ My Uncle Shane had pws, this was a great video

[Cstina087]

Very good video, my 3 year old has Prader-Willi Syndrome.

[castillolidia18]

Your a very strong woman i admire that. God bless you

[alittlestormsmomma]

we are all here together fighting this never ending fight for our sweet children, god bless , kim proud momma of ms stormy (almost 3)

[eunikwa]

god bless you and your family. May the great Almighty continue to give you strength to continue to support sonny. I hope cure will be discovered soon.