Understanding Pulmonary Hypertension

An introduction to the symptoms of pulmonary hypertension, how the disease affects patients lives and the progress being made to fight PH.

This clip appears clip is an introduction to the "Understanding Pulmonary Hypertension" DVD, available in PHA's Press Kit. For a free press kit, write to Nathan@PHAssociation.org

Category:

Nonprofits & Activism

Tags:

• PH
• Pulmonary Hypertension
• PHA
• Hope
• Rare Diseases
• Scleroderma
• Lupus
• Sickle Cell Anemia
• PHA Press Kit
• Understanding PH

[jamiedude88]

Excuse me PHA, im wondering if you think i should talk to my docter about PH. Everytime when i run around 500+ metres my body goes numb and i cant feel any body part. Then i go extremely dizzy. And i almost pass out. Also i get swelled up ankles randomly around 19 times a week. Could you get back to me as soon as you can? Thank you so much.

[PHAssociation]

Whether youre a PH patient or not, PHA encourages everyone to share information with their doctors on pulmonary hypertension because this is such a rare, little-known disease. While PHA doesnt give individualized medical advice, we do encourage you to speak with your doctor about dizziness, swelling, or any other health problem that you may be experiencing, as it may be related to PH or a number of other medical conditions. Thanks for your question!

-PHA

[Littleangelgrr]

had ph , i am 21.. Today i have new lungs and a new heart... Transplant is still a hope..

[JackLovesMuffins]

I'm a 14 year old boy and I was diagnosed with Pulmonary Hypertension back in December as they went in to patch my ASD. Just recently, I was sponsored by MakeAWish and granted a wish. i have had many support and i hope for a cure soon.

[teafree1977]

I was dx'd in 2009; as of 2012, I'm having such a difficult time dealing with this...it's a daily battle!

[gadionson1]

how sad of that little boy...

[Agaravalia1]

@every1lovstheslinky I was diagnosed with PH back 2009 and today thanks to Dr. Robert Frantz and Mayo Clinic in Rochester I am now on a drug called Tyvaso and it is a solution that you put into an electronic inhaler and you breath it in. I take 5 breaths a day 4 times a day 4 hours apart and without the inhaler and two types of pills that I have to take everyday I would not be here or I would not be in the condition that I am in now. Thank you Mayo Clinic and Dr. Frantz you guys are the best.

[vikingscool]

@JackLovesMuffins almost same but I have Flolan for almost 10 years now. Flolan is best fit for my life with PH.

I was sponsored by Make-A-Wish Foundation, they granted me a wish, then I went to S.F. to see my cousin work at Stanford, and visit San Francisco with my family. Good times.

[vikingscool]

@KingLeoVlog My PH caused sleep apnea back in 2006 that when it began. I can't sleep well without having an oxygen tube in my nose.

[KingLeoVlog]

I have what looks like the start of pulmonary hypertension, caused by sleep apnea. Having a sleep study done soon and hopefully this will help quite a bit. I just started a blog (vlog) on it to track what goes on. Good luck every one!