Epidermolysis Bullosa (EB) is a painful genetic skin disorder that causes skin layers as well as body linings to seperate and blister at the slightest touch. For more information please call the DEBRA Ireland office on 01 412 6924
just watched claudia and her parents on the late late show, we were just left speechless by claudia and the other lady who was interviewed, it really hit home as we have a little girl ourselves, cant imagine how hard life must be for claudia and her family, i felt ashamed thinking of the stupid, mindless things that i crib about after watching the interview on the late late, hope every body goes to the debra site and makes a donation, even if everybody left 1 euro as michael o leary said, xxxxx
This is for you and Claudia, my niece is almost a year and we are going through the same thing because she has EB too. I know how hard it is so I know how much I support it.
she is the cutest wee thing, i went to the DebRA charity event in the glasgow crowne plaza and had an amazing time, they played this video and i damn near started crying, i had no idea such a thing existed, this video really got to me, i truly hope things improve for her. goodluck!
im just back from connemara walking to raise money for these poor kids,bless them,i think this video is very sad.i met great people this wkend.and it is a very good cause,the organisers work hard and need as much support as they can get.hopefully we will meet again on another challange,god bless for now and .
just watched claudia and her parents on the late late show, we were just left speechless by claudia and the other lady who was interviewed, it really hit home as we have a little girl ourselves, cant imagine how hard life must be for claudia and her family, i felt ashamed thinking of the stupid, mindless things that i crib about after watching the interview on the late late, hope every body goes to the debra site and makes a donation, even if everybody left 1 euro as michael o leary said, xxxxx
mutedspy 1 week ago
This is for you and Claudia, my niece is almost a year and we are going through the same thing because she has EB too. I know how hard it is so I know how much I support it.
1boptop 3 months ago
oh god, poor little girl.. i feel soo sorry :( I hope she gets better..
ThePsihopaats 11 months ago
We are trying our best to help debra!
Big hug for Claudia!
LOVE
Lydia
4loveprojects 1 year ago
she is the cutest wee thing, i went to the DebRA charity event in the glasgow crowne plaza and had an amazing time, they played this video and i damn near started crying, i had no idea such a thing existed, this video really got to me, i truly hope things improve for her. goodluck!
VivalaryMan 1 year ago
@deboeahshasha Thanks for sharing!
mindfulmusic78 1 year ago
CLAUDIA just shared you all over face book as well another big hugs wee deborah sha sha xoxo ireland xo
deboeahshasha 1 year ago
hi little one CLAUDIA YOU TAKE CARE SENDING YOU A MASSIVE HUG
AND BIG KISS WEE DEBORAH SHA SHA XOXO IRELAND XOXO
FAVED AND SHARED
deboeahshasha 1 year ago
im just back from connemara walking to raise money for these poor kids,bless them,i think this video is very sad.i met great people this wkend.and it is a very good cause,the organisers work hard and need as much support as they can get.hopefully we will meet again on another challange,god bless for now and .
graham8471 2 years ago