Lupus rashes and your biggest Fear (2-21-10)

What is your biggest fear about having lupus? Please comment on any rashes you have gotten, and any information on them below!

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Category:

Education

Tags:

• Palo
• Verde
• basketball
• samantha
• bigsanfer32
• lupus
• rash
• biggest
• fear

[babble2leeza]

Lupus has taken so much from me.I can no longer: work, take care of myself, stand long, walk far, hike, dance, swim, clean, cross stitch, crochet or any thing I used to do when I was not sick.I've had liver, kidney, gallbladder and cognitive problems.Rashes kind of help my family know how bad I am getting when we are out.I don't want to go blind.I am not afraid to die.I just don't want my family to hurt.

[bigsanfer32]

@babble2leeza looks like you have a pretty severe case of lupus and I wish you the best with your struggles. I wish my words could do more. Have you found a good doctor? Cause if not I would keep looking.

[princesskris1000]

As for my Fear lets just say its not dieing, Its more like Depression becaue it runs in my Family and the thought of being anything but my cheerful, happy optimistic self is scary, I'm afraid that if I get depressed no one will listen to me or care about me anymore.. I'm also afraid of surgery, I know its weird but until I got Lupus I was Healthy and never had to stay in the hospital or get blood drawn and now I have... Surgery has always been my number one fear in life.

[princesskris1000]

I'm new, thanksgiving week will be my 6 month mark of being diagnosed with Lupus. I love just being active, not soo active that I loose weight or put myself in danger but enough that I'm healthy and having fun. I have had the butterfly Rash since I was atleast 9 maybe younger, the only thing I do for it is wear wide brimmed hats and sunscreen when I go outside for more than a couple minutes. Its been a part of me for as long as I can remember so I dont really care, It adds to my Beauty.

[sadihymas]

hi my name is sadi i have just bean diagnosed with lupus i have bean watching your videos they are good and i have bean having a butterfly rash and swelling in my feet im constontly tired i doent ever fill like im geting any rest. im scared if its going to get wors i also have back proublems so dilling with thas to thanks for all your videos.

[90tolife]

I don't get the rash either, but everything else....including losing my kidney. When I was 21 lupus as completely killed my right kidney and it had taken many many hospital stays to keep the other one working properly. You definitely don't want kidney involvement. You're an amazing young lady & I really hope you help tons of people and offer them hope. I know I have found my vehicle to do that. My biggest fear has been not seeing my children grow up. I have already missed a lot of their lives.

[mrstimber0311]

YOU CAN BE A SUPERSTAR!!! I SEE IT IN YOU< SERIOUSLY!!! U R! ;')

[zuppie699]

You might never get the rash that bad,,,,,you are young you should just stay out of the sun.....nothing more may happen to you...so just do what you do and don't worry because you know that makes things worse.....rashes and kidney problems do not always happen. Good luck

[myhideaway08]

I was diagnosed with lupus back in 1999,(DLE) I have had no luck with any corticosteroid creams or ointments. I have had a lot of luck with Avon Anew, believe it or not. I had a very thick almost kind of scale on my nose, after using Avon Anew, it is almost gone!