My life with Ankylosing Spondylitis

This is a video about how it developed for me and how I deal with it day to day.

Category:

Education

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• firstASvid

[bby4ta]

A lot has happened in the last month. I am now on methotrexate (makes me feel like I have the flu for two to three days) and seems to be helping. Not much I would have to say. Now that the prednisone has fully left my system my hands are back to no strength, always a purplish red and in pain. My back and hips are also back to "just don't bend or move me". I am only in week three of the methotrexate still have two months to go to see if it is working. Until then I am out on disability.

[ASsufferer]

@bby4ta Wow thats a long time to wait and see. I know how it is though. Medicine takes time to do its thing sometimes. Have you ever tried magnets to alleviate pain? I use a back brace with magnets built into it and its a life saver. Some people dont feel relief but I did. It works better on bone related pains than muscle main, but it does something! Best wishes to you and I hope the new meds work for you. Take care.

[ajonz9213]

I had hip and low back pain for over 2 years now. Currently i am 19 years old and after 5 Orthopedic doctors, 2 Physicians, and 1 rheumatologist i hope to have it figured out. She deduced from blood tests that i have some how contracted ankylosing spondylitis. Currently i have started Methotrexate after trying sulfasalizine . if you havent found any answers to your pain i would suggest seeing a rheumatologist. If you have any other tips let me know. its not an easy disease.

Andrew, 19

[ASsufferer]

@ajonz9213 Well, the truth is that Ankylosing Spondylitous is a condition really, not a disease. The real root of it all is a little germ that is usually not a problem. We all get it and make a white blood cell for it. The trouble is that in some people, their cartilage has the same gene as the disease. The white blood cells kill the germ, then go to work on all the cartilage. That causes inflammation (pain) and then eventually joint break down. You are right it is very hard to live with.

[aziz829tube]

I had Stick the neck vertebrae , so any surgery could bring the flexibility once again i am about to Suicide

[ASsufferer]

@aziz829tube My heart goes out to you. I know how you feel. Just try to find some way to get relief before you pull the plug. You own that to yourself.

[LotarL31]

I'm waiting for a diagnosis at the moment. Whether its AS or Spinal Arthritis is the big question. Your video is really helpful and better than the scientific videos on the condition.

[Mickeym1a2n3]

@Mickeym1a2n3 i am 55 and had this shit since i was 19 its a bitch PERIOD!

[Mickeym1a2n3]

@thepurpledevil27 What?

[thepurpledevil27]

@Mickeym1a2n3 straightforward without being a jerk. props*

[thepurpledevil27]

@uniqueStephen awesome. definitely gonna try th. Does water therapy help?

[thepurpledevil27]

@eeyore102601 awesome that the doc will follow him! :)

[thepurpledevil27]

@ASsufferer PS HLA-B27 positive

[thepurpledevil27]

@ASsufferer thank god for you. I was searching my spondyloarthropothies and it said something about my immune system being " so stupid it attacks my body" that feels... i dunno... like I brought it on myself. I've had diagnosed spondyloarthropthies since I was nine... what did I do?

[uniqueStephen]

@chucknorrisboy221 Take care to do things slowly - Your doing two things with physical therapy for A.S: Gaining or maintaining mobility - i.e flexibility and you are puttign weight on the bones in different directions which helps to stop them from demineralising. But if you hurt yourself you can do more harm. Dont work a joint when it is really painful or do so but with low weight and low repetion. Try working out with the cable machines, upright rows, and use the seated leg presses.

Good luck