7.15pm trigger was just tiredness
History of breath holding spells which resulted in a status epilepticus lasting over 90 minutes and 24 hours intubated in ICU. Diagnosed 3 months later with Reflex anoxic seizures (RAS)
http://themeaningofkai.com
video journal, history, RAS information
More videos are here http://www.youtube.com/user/themeaningofkai
Please take the time to visit his website and share with your family and friends, we need more public awareness and community and medical support.
He's beautiful. I've watched three of your videos and this one made me smile a bit, when he said "oh" after he woke up. Be strong there.
lovycat987654 5 days ago
@natkaist its to help people,its so hard to get a diagnosis and watching these videos put parents at ease,my daughter is 18 and has has RAS since she was 15 months,if i had seen one of these videos back then,it would have saved a whole lot of worry,thinking my child was dying.
csueven 1 month ago
To the former comment. Parents whom experience these Seizures with their children are doing a service to other parents by posting here. This gives those who may not know what is happening with their own child a way to view others who are dealing with similar problems. In addition, she is posting the triggers for the child's episodes which helps others as well. . .
kjmatlak 7 months ago 2
what are you dooing with youre chaild, whi you film his every reflex anixic? My child do this reflex to,but im dont film every time,and his have 10 mo,meby you are verry mad with youre child if him do allat this cris?
I 'm sorry i m not american.
natkaist 1 year ago