CJD, a personal story

Steve, a California physician, whose wife spontaneously developed CJD, shares his experiences with the public. CJD is a rapidly progressive dementia whose study may yield important insights about other, more prevalent dementias. We thank Steve and his children for sharing their stories. Their contribution has contributed to a growing awareness about CJD.

UCSF's Institute for Neurodegenerative Diseases, directed by Stanley Prusiner, MD is aggressively pursuing a treatment for CJD. Dr. Prusiner discovered that misshapen prion proteins cause CJD. For this discovery, Dr. Prusiner was awarded the Nobel Prize in Physiology and Medicine in 1997.

This film won the 2010 Neuro Film Festival sponsored by the American Academy of Neurology Foundation.

Category:

Education

Tags:

• CJD
• first symptom
• feeding tube
• creutzfeldt
• funeral
• dementia
• UCSF

[TSEPRION]

Monday, January 2, 2012

EFSA Minutes of the 6th Meeting of the EFSA Scientific Network on BSE-TSE Brussels, 29-30 November 2011

transmissiblespongiformencepha­lopathy.blogspot.com/2012/01/e­fsa-minutes-of-6th-meeting-of-­efsa.html

Friday, December 23, 2011

Oral Transmission of L-type Bovine Spongiform Encephalopathy in Primate Model

Volume 18, Number 1—January 2012 Dispatch

transmissiblespongiformencepha­lopathy.blogspot.com/2011/12/o­ral-transmission-of-l-type-bov­ine.html



[zuniga6412]

My heart goes out to you.

[hitcan79]

@ilnvrtl sorry for your losses, I hope the two sons are ok.

[hitcan79]

@JackHoang14 Sorry for your loss to this horrible disease.... I hope the same you do.

[hitcan79]

@issy522 Sorry for you loss, and everything your sister went through, wow, I can't even imagine, she no longer suffers.

[hitcan79]

wow I didn't realise there were more than one person commenting here that has lost a family member to this disease, instead of saying it to every individual this is better... Sorry for all of your losses, It must have been so hard to go through.

[hitcan79]

@cyty08 sorry for your loss, and sorry for the pain your mum, you and your whole family must have went through, and no doubt still going through...

[cyty08]

Also it is not necessarily genetic, my mums autopsy showed she did not carry the faulty gene, so myself and siblings do not need tested, How do you catch Cancer....you dont, its just one of those things...If you think you know someone with this horrifc disease please push the doctors to get an EEG, or a lumbar puncture, sometimes the only way for diagnosis.

[cyty08]

This is a horrific disease, my mam died 14th Nov 2010, such a horrible thing to watch her go through, she fell ill in September and died less than 2 month later, I think there is not enough known about this disease, not that there is any cure, but we struggled to get a diagnosis. dementia, water infection, alzhimers the list goes on, people need to be educated, sporadic CJD is not contagious, it is not caught by eating beef, it is a one in a million chance you will contract it.

[issy522]

Thank you for sharing this beatiful video and your story.How courageous of you!. CJD is a horrible disease, and one who has not seen the last stages of it cannot possibly imagine the absolute hell that all involved go through with it. Your video was very uplifting, I loved the music, I loved the way that you told your tale. You have uplifted my sad and aching heart. My only sibling, my dear, sweet sister died from the sporadic form of cjd in May. My heart goes out to you and your family.