Non epileptic myoclonus of infancy

Our baby angel started having jerks around 5-6 months old. It came very suddently, and soon she had around 100 seizures a day! Doctors thought she was suffering from Infantile spasms and for months, we went from hospital to hospital and from doctor to doctor. She went through 2xEEG and MR brain scan, but they couldnt find anything!! The diagnosis she got, was "non epileptic myoclonus of infancy", and one day the seizures just stopped!! We haven't seen them for months now, and our daughter is developing with HIGH-SPEED! Hopes and prayers from hundreds of people saved our daughter... Thank you God!!

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[Quvang79]

Dear you,

I am not in the position where I can discuss diagnosis of different kind, you need your doctor or specialists to do that. But I do think that you should contact your doctor, and try capturing the jerks on tape, that really helped us, as the medicals had something to compare with. It can be very difficult to force a jerk during 5 minutes of consultage. I hope your daughter will grow to be as perfect as our daughter is today :) Good luck.

[Quvang79]

their brains developing. The brain is not finished developing at birth, and when I think of it now, it is not strange that the body reacts while chemistry is happening :o)

Good luck to you and your daughter - with a clean EEG, I am sure that she will be just fine.

[Quvang79]

Thank you very much. Our daughter is today 1½ years old and very well developed!!

I will cross my fingers for you, thats for sure!! I don't know if it is any help to you, but during our rough time I was in contact with many parents who experience the exact same thing with their babies, starting around 5-6 months old. None of them are sick today! It is difficult to think straight while you are in the middle of your worst nightmare, but today I am convinced that it is very normal, and that it is

[olivia20116]

@slayer69247

This is so interesting. I have just posted my daughters up on You Tube. She has also jsut had her injections last week (6 month for hooping cough). Could this be related? What is your situation now. I am in tera reading up on all the various syndromes that seem very serious.

[Westonsmommy11]

My son is almost 9 months and started doing the same thing about 3 weeks ago, his are mild, seem to mostly happen at highchair time, and he does these same spasms in his shoulder, jerking it towards his head and one arm at times jets out and jerks slightly. He makes faces but doesn't cry and never seems bothered. He is developmentally perfect (so far) I am hoping and praying he has this condition and not an epileptic condition, I have breakdowns reading up on infantile spasms/conditions...

[MrMcshane70]

Neurological synapse damage

[lovesmylivie]

My little girl is 6 months and her jerks aren't continuous like these but when she is focused on an object for a few seconds then she jerk as if someone has scared her. Do u think it could be infantile spasms or benign myoclonus?

[slayer69247]

I also have a son, 13 months who has been diagnosed with myoclonic jerks. Waiting on results for EEG, blood and urine. This all started after his vaccine. They last one second, where the body jerks and it has been very stressful if anyone has any recommendations pls help me. God bless all the children who have been affected.

[luigiboyzz]

Hi, my daughter does that same thing she has 3 EEG with no evidence of hypsarrytmia, my doc tolds us that is is called "benign myoclonus of early infancy" and that she will outgrow them, but he is recomending us to give her a medicine called keppra to "minimize" the movements, do you gave her anything? can you give me your email? we don´t know what to do.... thank you for the hope

[franciscoloperalopex]

Los eventos epileptoides se pueden entender a la luz de los conceptos del proceso de enfermar de las medicinas biologistas o la Nueva medicina de Hamer entre otras.

[DawnieLou]

oh she is adorable! the jerks almost look painful with how violent they are [or were] but she doesn't seemed fazed & just keeps on bouncing. she looks a LOT like my daughter Trystan. :)