Mom & Teen Daughter with Mitochondrial Disease Speak
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3:06
A young adult with Mitochondrial Diseaseby mitoaction3,726 views- 10:01
Living with Mitochondrial Diseaseby mitoaction18,846 views
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Michel, a child with mitochondrial disease, playingby yolandaspijker366,915 views
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Update: The Meaning of Mitochondrial Diseaseby Wilmotion531 views
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1st Semester Finals & Teen Mom?by numnum940 views
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Mitochondrial Myopathy | Miracle Natural product for mitochondrial myopathyby dfaitel2,443 views
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The Meaning of Mitochondrial Diseaseby mitoaction5,388 views
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teen mom & wifeby NATEMOMMY70,570 views
- 1:30
Mitochondrial Disease Advocacy Speechby mitoaction5,688 views
- 6:37
Living with MitoAction - Part 2by tehmezz587 views
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Update: The Meaning of Mitochondrial Diseaseby mitoaction5,695 views
Thank you for speaking out! I have had four doctors say they think I have mito disease, but we are struggling to get an appointment to see a Mito specialist. In the early stages of my misdiagnosis, I was actually hospitalized for Conversion Disorder, a pyscho-somataform disorder. That was the most traumatizing event of my life. I pray that your family will have great success in your battle.
codybear0597 1 year ago
Thank you so much for sharing! I have been very sick with mito (misdiagnosed for years) and have two children with it as well. Most of my family members have the disease as well but are not 'as sick' as my children and myself. I had actually been reported by a doctor for possible Munchaussen Syndrome by Proxy when my oldest son became symptomatic at the age of 4 months following his first cold, although that was years ago, the scars are fresh.
Sally
SalTaylor01 3 years ago
Thank you for your Video
HD Families of Maine
Mike & Raima
madrywallmike10 3 years ago
heartfelt hugs! I also have a mito disease. Thank you for speaking up; we need more voices to raise awareness. I've started a national fundraiser for the UMDF. (United Mitochondrial Disease Foundation) My project is called Beat MITO. Please spread the word! The information is up on UMDF national fundraiser page. It's a professional classical piano CD that I recorded myself that is being sold to raise money. Spread the word to any classical music lovers you know!
louannc 3 years ago
Thank you, for giving family's like ours a voice and giving other's just a small glimpse into what is our daily life of never ending struggles. Our family has not been silent either but despite our efforts currently we have no local doctor that will treat us or can. Not only can't we afford the multiple medications prescribed by our specialist for Mito specifically, we have no money for food or other basics.
evada567 4 years ago