Smith-Magenis Syndrome
Uploader Comments (cassiemjh)
All Comments (11)
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Does she do the self-hugging when she's excited or overwhelmed? I heard that's a common SMS trait. I'd like to see a video of it but I can't seem to find one.
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My daughter is now 4 years older than she was in this video. She has not grown fat. I'm not sure why. She loves to eat but I make her play outside every day. She is even on medication that is supposed to make her fat. My advice is to make your SMS kid go outside every day and run around. I make her do things for herself. I am trying to stop catering to her.
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I can see that yours also has biting marks on her hands.. I want to know is yours also easting all the time.. ? It just because my little sister, who by the way also has this syndrome, has grown really fat.. And she keeps eating, if you have the same probleme, how do you solve it.. P.S the boy who's tired of never having any food in the house.. -.-
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awww. my brother has smith megenis syndrome and sometimes its hard to deal withthe tantrums and he lovves to put his hands in his mouth lool ha
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Audrey, I watched Kylie's video. Excuse me while I sob over how beautiful your baby grandaughter is. I am Morgan's mom. The video I posted of Morgan is 3 years old now. She has grown. I can tell you that I do see some similar characteristics in facical features as Kylie is growing. I'm not sure that Kylie has Smith-Magenis Syndrome but I do have a lot of info if you wish to exchange email addresses. God bless your angel and mine.
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Very Good Morgan, that's wonderful work! I'm now wondering if this is what my granddaughter, Kylie has! She can also spell with certain computer games, walked late, delayed speach, etc. Genetics had mentioned about a little DNA missing from her Y17 Chromosone, but never gave us anymore information, this was back in 2008. Please watch Kylie's videos on my channel and let me know what you think, I'd appreciate it very much. You have a beautiful daughter, God Bless you all.
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Wow she's is one clever girl! My daughter also has SMS she is two years old, I have a couple of montages of her on here feel free to have a look! Thank you for sharing your video of Morgan it gives me lots of hope for our future, Lots of Love Emma and Grace x x
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I was tested for this although I came back negative! Best wishes - suekosa
Wow, I"m impressed! I nanny two "normal" twin kids that are the same age as your daughter seems to be (5) and they don't know half of that!!! She's a cutie!
coocoocarol 3 years ago
Thank you. She was 6 in that video. I have worked very hard with her.
cassiemjh 3 years ago
Okay, I'll check that out, thanks. Are you involved with the PRISMS SMS list?
cassiemjh 3 years ago