Ciara's Light.wmv
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My granddaughter has this....my daughter doesn't speak to me...but has let me know a few times recently that my granddaughter has this Dravet Syndrome....and she is only 4 years old. I hope & pray for my daughter to learn all she can about this Dravet Syndrome and understand that she is not alone, that Hailey is not Alone. Thank You for sharing this beautiful informational video. Blessings to your daughter & you. I pray for a cure...a Miracle...for all with Dravet syndrome.God Bless
alohaburner 3 months ago
My heart goes out to this little one. No child should have to go through this sort of thing. Be strong for her. :)
Paranormalady 11 months ago
Thank you so much for sharing this with us. I have a young cousin that has seizures (and is currently being tested for Dravet Syndrome ... this helps families that do not have this in their lives everyday but have extended family that do have a better understanding of what they are going through. I pray for your family and all those that are affected about this terrible disease; I pray that we find a cure ...
thaylia73 11 months ago