PLEASE READ!
Case Hogan is 3 years old. He is very dear to me and I am trying to spread the word about his condition to help raise funding for research and his family's medical expenses. They are wonderful people and he is a truly special boy.
Hunter Syndrome (or Mucopolysaccharidosis/MPS II) is a rare condition affecting between 1 in 100,000 to 1 in 150,000 male births, although it is estimated that the grouping of MPS conditions collectively affect 1 in 25,000 births in the United States (MPS conditions include MPS I, II, III, IV, VI, VII and ML II and III).
Hunter Syndrome affects a child both physically and mentally, although its effects are different in every child. Generally, cognitive development slows between ages 2 and 5 and then regresses after that. There is no current treatment for the cognitive effects of the disease, although a clinical trial has begun which will attempt to help in this area.
There are many ways in which you can help this boy and others like him.
Spread the word by sharing this video with family and friends.
Donate by visiting www.savingcase.com
You can purchase t-shirts and wristbands here: http://www.savingcase.com/gear.html
Please help this little boy. Thank you.
Case is the son of one of my dearest friends, Chris Hogan. My heart just breaks for him and his family. I pray that God keep Chris and Melissa strong through this and I pray that God heal Case, that he may live a long and happy life. God bless you all.
Love
Tina Renee
renee12softball27 1 year ago 2
That was very touching. I hate to hear about lives of innocent children being threatened so unfairly. I will keep him and all of you in my prayers.
Love, Lamy xxx
LaminaJones 1 year ago 4